束手有策:急性白血病患儿家庭抗逆力的质性研究——以昆明市P医院为例

Strategies in the Dilemma:A Study on Family Resilience of Children with Acute Leukemia——Taking P Hospital in Kunming City as an Example

急性白血病患儿家庭面临信念系统倒塌、组织模式错位与沟通过程失序三重风险因子。直面风险因子,家庭对内再构逆境意义、调整角色分工、形成良性沟通;对外与其他患儿家庭共筑乐观信念、联合社会力量、重视医患双向沟通。这些调适策略使得家庭信念系统趋于积极、家庭组织模式趋于稳固、家庭沟通过程趋于正向,最终重构家庭的保护因子,形成家庭抗逆力。家庭抗逆力研究对于维持家庭良性运作、维护家国稳定具有重要意义。

Families of children with acute leukemia face triple risk factors such as the collapse of the belief system,the dislocation of organizational models,and the disordered communication process.Facing risk factors,the family reconstructs the meaning of adversity,adjusts the division of roles,and forms benign communication;externally builds optimistic beliefs with other families of children,unites social forces,and attaches importance to two-way communication between doctors and patients.These adjustment strategies make the family belief system become more active,the family organization model becomes more stable,and the family communication process becomes more positive.Finally,the family’s protective factors in adversity are reconstructed and the family resilience is formed.The formation of family resilience is of great significance for maintaining the normal operation of the family and maintaining the stability of the country.