以家庭为中心的任务导向性训练计划对痉挛型脑瘫患儿功能独立性和生活质量的影响

Family-centered task-oriented training can significantly improve the functional independence and life quality of children with spastic cerebral palsy

目的观察以家庭为中心的任务导向性训练计划对痉挛型脑瘫(SCP)患儿功能独立性和生活质量的影响.方法将符合入组条件的SCP患儿62例采用抽签法随机分为对照组(31例)和TOT组(31例).对照组患儿按出院指导手册给予家庭康复训练,TOT组则采用家庭为中心的TOT计划进行干预,TOT计划包括训练计划制订和训练质量控制.2组患儿均按要求每日训练1次,每次训练1 h,每周训练5 d,连续训练6个月.于治疗前、治疗3个月后和治疗6个后采用儿科残疾评定量表(PEDI)、儿童功能独立性评定量表(WeeFIM)和儿童生活质量量表(PedsQL)分别评估2组患儿的移动能力、功能独立性和生活质量,并进行统计学分析.结果治疗6个月后,2组患儿的移动能力、WeeFIM和PedsQL评分与组内治疗前比较,差异均有统计学意义(P<0.05),且TOT组治疗6个月后的移动能力、WeeFIM和PedsQL评分分别为(76.13±6.68)分、(84.32±6.6)分和(72.55±5.90)分,均显著优于对照组治疗6个月后(P<0.05).结论采用以家庭为中心的TOT计划进行训练可显著改善痉挛型脑瘫患儿的功能独立性和生活质量.

Objective To observe the effect of a family-centered task-oriented training(TOT)program on the functional independence and life quality of children with spastic cerebral palsy.Methods A total of 62 children with spastic cerebral palsy were randomly divided into a control group(n=31)and a TOT group(n=31).The children in the control group were given family rehabilitation training according to the discharge instruction manual,while the children in the TOT group received family-centered TOT.Both groups trained for 1 hour once a day,5 days a week for 6 months.The mobility,functional independence and life quality of the two groups were evaluated with the pediatric evaluation of disability inventory(PEDI),functional independence measures for Chinese children(WeeFIM)and a pediatric quality of life inventory(PedsQL)before and after 3 and 6 months of treatment.Results After 6 months there was significant improvement in the average mobility,WeeFIM and PedsQL scores of both groups.The average mobility,WeeFIM and PedsQL scores of the TOT group were then significantly better than those of the control group.Conclusion Family-centered TOT training can significantly improve the functional independence and life quality of children with spastic cerebral palsy.