先天性胫骨假关节患儿父母家庭抗逆力资源的质性研究

Qualitative study on family resilience resources in parents of children with congenital pseudarthrosis of the tibia

目的探讨先天性胫骨假关节(CPT)患儿父母的家庭抗逆力资源,为制订提升其家庭抗逆力的护理干预方案提供参考依据。方法采用目的抽样法,于2020年12月—2021年1月选取在湖南省儿童医院骨科病房住院治疗的13名CPT患儿父亲或母亲为研究对象,采用质性研究中现象学研究法对CPT患儿父母进行半结构式访谈,采用Colaizzi 7步法对资料进行整理、归纳、分析及主题提炼。结果CPT患儿父母家庭抗逆力资源体现在3个方面:个人资源、家庭资源及社会资源。结论临床对CPT患儿父母实施家庭抗逆力干预时应充分利用其自身资源,在考虑患儿父母的学习能力及心理状态基础上结合具体需求,提供个性化连续干预;干预对象尽可能纳入更多家庭成员,并加强多元化支持体系的建立,帮助患儿父母获取更多的社会资源。

Objective To explore the family resilience resources in parents of children with congenital pseudarthrosis of the tibia(CPT),so as to provide a reference for formulating nursing intervention to improve their family resilience.Methods From December 2020 to January 2021,purposive sampling was used to select 13 father or mother of children with CPT in the Department of Orthopedics of Hunan Children's Hospital as the research object.Semi-structured interviews were conducted with parents of children with CPT using the phenomenological method in qualitative research.Colaizzi 7-step method was used to organize,summarize,analyze and refine the data.Results The family resilience resources of parents of children with CPT were reflected in three aspects,namely,personal resources,family resources and social resources.Conclusions Family resilience interventions should make full use of their own resources when implemented in parents of children with CPT.Individualized continuous intervention should be provided by taking into account the learning ability and psychological state of the children's parents and in combination with specific needs.The intervention target should include as many family members as possible,and strengthen the establishment of a diversified support system to help parents of children with a large number of social resources.