决策辅助工具在炎症性肠病患者中应用的范围综述

Scoping Review of Patient Decision Aids in Patients with Inflammatory Bowel Disease

目的对炎症性肠病患者决策辅助工具的特征、功能及应用效果进行范围综述,为今后国内开展相关研究提供参考和借鉴。方法系统检索中国生物医学文献库、中国知网、万方和维普数据库、PubMed、EMBASE、Web of Science核心合集、Cochrane Library、CINAHL数据库中的相关研究,检索时限为建库至2021年7月,应用范围综述方法框架对文献进行分析。结果共纳入11个决策辅助工具,主要类型包括基于网络的决策辅助工具和纸质版决策辅助手册,通过收集患者偏好信息,提供疾病相关知识辅助医患共同决策;应用的效果评价包括医生与患者的接受度与满意度、工具的可行性和有效性等指标。结论炎症性肠病患者决策辅助工具应用效果良好,建议医护人员在了解和评估国外决策辅助工具的基础上,研制和发展标准有效的工具提高炎症性肠病患者决策质量,推广其临床应用。

Objective To summarize the characteristics,functions and application effects of patient decision aids in patients with inflammatory bowel disease,and to provide reference for relative studies in China.Methods The relevant studies were systematically screened in SinoMed,CNKI,Wanfang and VIP databases,PubMed,EMBASE,Core collections of Web of Science,Cochrane Library and CINAHL.The retrieval period was from the inception to July 2021.The scope review was applied to analyze the literature.Results Eleven patient decision aids were included,which were mainly web-based decision aids and paper-based decision aids.By collecting patient preference information and providing disease-related knowledge,doctors and patients could make joint decisions.The assessment of application value was conducted in terms of the acceptability and satisfaction of doctors and patients and the feasibility and effectiveness of the tool.Conclusion The application effect of patient decision aids for patients with inflammatory bowel disease is favorable.It is suggested that researchers should develop standard and effective tools to improve the decision quality of patients with inflammatory bowel disease and promote its clinical application after the assessment of foreign patient decision aids.