罕见病儿科医师培训

Training of rare disease pediatricians

罕见病的儿科医师培训是罕见病工作面临的诸多挑战和难点之一。应充分认识培训重要性,密切关注国内罕见病相关政策和规定,科学客观根据罕见病疾病特点以及各地罕见病患者诊治需求,分层次、按需求、重实践地有序开展罕见病儿科医师培训,旨在使罕见病患者最大获益。

rare Training disease for pediatricians is one of the challenges and difficulties among entire rare disease field.The importance of such training should be well recognized.It is suggested that rare disease training for pediatricians could follow the national relevant regulations and policies,based on the demonds of local patients and,carry out on different levels,requirements and practice.The aim of training will benefit more for patients.