系统性红斑狼疮患者网络健康信息鉴别能力干预方案的构建

The development of an interventional program on identification ability of online health information in patients with systemic lupus erythematosus

目的 构建系统性红斑狼疮患者网络健康信息鉴别能力干预方案。方法 在文献研究、方案意见征询会议的基础上,拟定系统性红斑狼疮患者网络健康信息鉴别能力干预方案初稿,采用德尔菲法,邀请15名相关领域专家对方案中的培训内容进行2轮函询。结果最终干预方案包括5次在线课程。针对培训内容,2轮专家咨询的专家积极系数均为100%,专家权威系数为0.90。经过2轮专家咨询后,各条目的重要性评分为4.06~4.93分,变异系数为0.05~0.18。培训内容包括系统性红斑狼疮基本知识、网络健康信息特征与质量、获取高质量健康信息的方法、鉴别网络健康信息的方法4个模块。结论 系统性红斑狼疮患者网络健康信息鉴别能力干预方案具有一定的科学性、适用性与可靠性,为下一步干预研究奠定基础。

Objective To develop an interventional program for improving identification ability of online health information in patients with systemic lupus erythematosus(SLE). Methods Based on literature analysis and consultation meetings,the first draft of the interventional program was constructed. Then Delphi method was adopted.Fifteen experts in the related fields were invited to conduct 2 rounds of mail consultations regarding the program contents. Results The final interventional program included 5 online lectures. For the training contents,the effective recovery rates of the two rounds of expert consultations were 100% with the authoritative coefficient was 0.90.After two rounds of expert consultations,the importance values of each item were different from 4.06 to 4.93. The coefficients of variance of each item varied from 0.05 to 0.18. The contents included 4 modules:basic knowledge of SLE,quality of online health information,methods to obtain high-quality online health information,and methods to identify online health information. Conclusion The interventional program for improving online health information identification ability in patients with SLE is scientific,applicable and reliable,which is the foundation for the following pilot study.