临终新生儿父母真实情感体验和需求的质性研究

A qualitative research on the real emotional experience and needs of parents of dying newborns

目的深入了解临终新生儿父母真实情感体验和需求,为新生儿安宁疗护工作提供参考依据。方法采用目的抽样法,选取2021年2—10月在湖南省儿童医院新生儿科住院的15名临终新生儿父母为研究对象,采用质性研究设计,应用半结构访谈法对研究对象进行深度访谈,采用NVivo 10.0软件进行资料分析。结果共提炼出3个主题,分别为放弃治疗时的矛盾心理、放弃后消极的生活影响、需求与期盼。结论临终新生儿父母放弃治疗时普遍存在矛盾心理,放弃后会表现出悲伤与无奈、自责与后悔、压抑等情绪。医护人员应对临终新生儿父母负性心理的关注及需求情况进行了解,给予父母有针对性的心理支持等照护,以帮助临终新生儿父母及其家庭渡过特殊时期。

Objective To deeply understand the real emotional experience and needs of the parents of dying newborns,so as to provide a reference for future neonatal palliative care.Methods From February to October 2021,purposeful sampling was used to select 15 parents of dying newborns in the Department of Neonatology of Hunan Children's Hospital as the research object.A qualitative research design was conducted,and the semi-structured interview method was used to conduct in-depth interviews with the research subjects,and NVivo 10.0 software was used for data analysis.Results A total of 3 themes were extracted,namely,the ambivalence when giving up treatment,negative life effects after giving up,needs and expectations.Conclusions Parents of dying newborns generally have ambivalence when they give up treatment.After giving up,they will show emotions such as sadness and helplessness,self-blame and regret,and depression.Understanding the real emotions and inner needs of the parents of dying newborns helps medical and nursing staff to pay attention to parents'negative psychology and understand their needs,and provide parents with targeted psychological support and other care,so as to help the parents of dying newborns and their families through a special period.