支气管哮喘患儿父母感知脆弱现状及其影响因素研究

The current status and influencing factors of perceived vulnerability in parents of children with bronchial asthma

目的了解支气管哮喘患儿父母感知脆弱现状及其影响因素。方法选取2020年7月—2021年6月在海口市2所三级医院就诊的334名哮喘患儿的父母作为调查对象。调查表包括一般资料调查表、父母感知脆弱程度量表、一般自我效能感量表和疾病不确定感父母量表。结果哮喘患儿父母的感知脆弱得分为(11.51±2.80)分;分层回归分析显示,患儿哮喘病程、父母文化程度、自我效能感和疾病不确定感是患儿父母感知脆弱的影响因素,可解释总变异的53.1%,其中自我效能感和疾病不确定感可独立解释29.4%的总变异。结论哮喘患儿父母感知脆弱为高水平,医护人员要多关注患儿哮喘病程长、文化程度低、自我效能感低和疾病不确定感高的患儿父母。

Objective To investigate and analyze the current status of perceived vulnerability in parents of children with bronchial asthma and its influencing factors.Methods A total of 334 parents whose children were treated in two tertiary hospitals in Haikou from July 2020 to June 2021 were recruited.The questionnaires included General information questionnaire,the Child Vulnerability Scale(CVS),the General Self-Efficacy Scale(GSES),and the Parental Perception of Uncertainty Scale(PPUS).Results The perceived vulnerability scores of parents were(11.51±2.80).Hierarchical regression analysis(stepwise method)showed that children's asthma course,parents'educational level,self-efficacy scores and disease uncertainty scores were the influencing factors of parents'perceived vulnerability score,accounting for 53.1%of the total variation.Self-efficacy and disease uncertainty could independently explain 29.4%of the total variation.Conclusion The perceived vulnerability of parents of children with asthma is at a high level.Professionals should pay more attention to those parents with long asthma course,low educational level,low self-efficacy and high disease uncertainty.