缓解期急性淋巴细胞白血病患儿父母照顾压力现状及应对方式

Pressure and coping style in caregivers of children with acute lymphoblastic leukemia in remission

目的:调查缓解期急性淋巴细胞白血病(ALL)患儿父母的照顾压力现状及其应对方式。方法:采用方便抽样法,选取温州医科大学附属第二医院育英儿童医院住院治疗的116名缓解期ALL患儿父母,应用一般资料调查表、照顾者压力量表(CSI)、特质应对方式量表(TCSQ)进行调查;采用SPSS19.0软件进行统计分析。结果:缓解期ALL患儿父母有照顾压力者(CSI≥7分)91人(90.5%)。CSI的3个维度中,工作经济压力得分最高;CSI的13个条目中“有经济方面的压力”者最高占95.7%,其次是“工作受到影响”占91.4%。患儿父母积极应对评分显著低于健康儿童父母,消极应对评分显著高于健康儿童父母(P<0.05);照顾压力总分与积极应对分数呈显著负相关(P<0.01)。结论:缓解期ALL患儿父母照顾压力大,以消极应对为主,积极应对有降低照顾压力的作用,医务人员应引导患儿父母采用积极应对方式,降低其照顾压力。

Objective:To investigate the status of care pressure and their coping style among parents of children with acute lymphoblastic leukemia in remission.Methods:Using convenience sampling method,we have randomly drawn out 116 parents of children with acute leukemia in remission who were hospitalized in the Second Affiliated Hospital&Yuying Children’s Hospital of Wenzhou Medical University.The questionnaire survey was conducted by using the General Information Questionnaire,Caregiver Strain Index(CSI),and Trait Coping Style Questionnaire(TCSQ)were applied.SPSS19.0 was used for statistical analysis.Results:Of 116 cases,91 caregivers had pressure(CSI≥7),accounting for 90.5%.From the three dimensions of CSI,caregivers scored the highest in the Work and Financial strains,followed by the Physical and Social strains,and relatively lower in the Psychological strain.Among the 13 items of CSI,“financial pressure”accounted for 95.7%,ranking first;followed by“work affected”,accounting for 91.4%.The coping style score of the caregivers had significant difference from the norm(P<0.05).Positive coping style score of the parents was significantly lower whereas negative coping style score significantly higher than the norm.Conclusion:Parents of children with acute lymphoblastic leukemia in remission have great care pressure and negative coping is predominant.Positive coping can reduce caregiving pressure,and therefore medical staff should guide parents of children with acute lymphoblastic leukemia to adopt positive coping style to reduce their care pressure.