上海市某社区随访的HIV/AIDS患者生活质量及影响因素

Quality of life score and factors of HIV/AIDS patients under the community follow-up in certain district of Shanghai

目的了解上海市某社区随访的HIV/AIDS患者的生活质量及其相关影响因素。方法对2021年10-12月在辖区内社区卫生服务中心接受随访服务的HIV/AIDS患者进行一对一问卷调查。使用t检验或方差分析及多元线性回归分析探讨可能影响社区随访HIV/AIDS患者生活质量的因素。结果本次研究共调查250名社区随访对象,平均年龄(40.77±11.57)岁;男性234例(93.60%);月均收入>15000元者占比最高(34.00%);受教育程度以本科/大专为主,占58.40%(146例);20.00%(50例)受访者最近半年有不适症状;241例(96.40%)受访者已经开始ART;93.20%(233例)的受访者在确证后得到过艾滋病ART相关知识的宣教;78.00%(195例)的受访者对目前的社区随访服务感到较满意或非常满意。通过多元线性回归分析发现月均收入水平和对社区随访服务满意情况对于生活质量各领域评分的影响差异有统计学意义(P<0.05);半年内有无不适主诉对生理、心理领域评分的影响差异有统计学意义(P<0.05);ART知识自我评估情况对生理领域、社会领域评分的影响差异有统计学意义(P<0.05);家人或朋友是否知晓其疾病状况对环境领域的影响差异有统计学意义(P<0.05)。结论为提升社区随访HIV/AIDS患者的生活质量,应进一步提升随访服务质量,改善HIV/AIDS患者随访服务体验;重点关注低收入随访对象生活质量状况;积极了解并及时处理患者的相关症状;切实提高受访者ART知识情况并鼓励随访对象如实告知家人朋友其病情以期获得更多帮助和支持。

Objective To understand the score of quality-of-life and related factors of people living with HIV who under the community follow-up in certain district of Shanghai.Methods We conducted a one-to-one questionnaire survey to people living with HIV who were regularly followed up by our community health service centres from October to December 2021 in Shanghai.Related factors were analysed through t test and multivariable linear regression model.Results A total of 250 subjects were investigated,with an average age of 40.77±11.57 years.234(93.60%)were males.The proportion of those whose average monthly income was more than 15000 yuan was 34.00%.The education level was mainly undergraduate/junior college,accounting for 58.40%(146).20.00%had certain discomfort symptoms in the last six months and 96.40%of them had started antiretroviral treatment.93.20%have ever received AIDS related knowledge education after HIV confirmation.78.00%reported to be satisfied or very satisfied with the current community follow-up service.Multiple linear regression analysis found that the average monthly income and satisfaction with community follow-up service had significant differences in the scores of various fields of quality of life(P<0.05).There was significant difference in the scores of physical and psychological fields between patients with or without certain discomfort symptoms in the past six months(P<0.05);The antiretroviral treatment knowledge self-assessment influenced the scores of physiological and social fields with a statistically significance(P<0.05).Whether family members or friends being aware of his or her disease status had effect of environment,and effect was statistically significant(P<0.05).Conclusions In order to improve the quality of life among people living with HIV who are under the community followup,follow-up services should be further improved to meet their satisfaction.Quality of life of those with low incomes should be enhanced.It is necessary to actively understand and deal with the HIV related symptoms reported by people living with HIV in time.Effectively improving the knowledge of antiretroviral treatment is important.We should encourage people living with HIV to disclose their HIV status to their family member or/and friends when appropriate in order to get more help and support.