化疗期乳腺癌患者体质量管理的用户画像研究

The user persona of weight management among breast cancer patients during chemotherapy

目的 探究化疗期乳腺癌患者体质量管理特征及人群差异,为乳腺癌患者体质量管理干预或应用程序的开发提供指导。方法 以目的抽样法抽取乳腺癌患者16例,采用半结构式深度访谈方法获取患者个人属性、移动设备使用情况、体质量管理现状,通过Colaizzi七步分析法分析资料,完成从原始资料—事实标签—模型维度的建构。人工抽取患者特征并构建画像,采用图片与用户标签形式完成画像的可视化。结果 化疗期乳腺癌患者体质量管理共提取4个维度,即体质量管理认知、化疗症状及情绪、生活方式改变、信息来源,结合患者的个人属性及上网习惯构建出5个患者体质量管理的典型画像,命名为积极的体质量管理者、疲乏不运动者、知识严重缺乏的青年患者、治疗优先的超重者、略有了解无规律运动者。结论 化疗期乳腺癌患者对体质量管理的认知及行为上存在较大差异,在制订体质量管理干预方案或设计移动医疗平台前应描摹患者画像,有针对性制订并实施干预策略。

Objective To explore the characteristics and differences in weight management among breast cancer patients during chemotherapy,so as to provide guidance for weight management or developing applications for breast cancer patients.Methods A total of 16 breast cancer patients were selected using purposive sampling,and semi-structured deep interview were conducted to obtain their personal attributes,mobile device usage and weight management,which were analyzed using Colaizzi′s seven step analysis method.The specific process is as follows:primary information,fact labels,model dimensions construction.Then the participants′ characteristics were manually extracted,and the visualization of the user persona was completed by pictures and user labels.Results Four dimensions of weight management among breast cancer patients during chemotherapy were extracted:cognition of weight management,chemotherapy symptoms and emotion,lifestyle changes and sources of information,which were combined with individual preference and internet use habit to construct 5 typical user personas of weight management:active weight manager,fatigue and non-exerciser,young patient with serious lack of knowledge,overweighter taking treatment as priority,irregular exerciser with a little understanding of weight management.Conclusion The cognition and behavior of weight management among different chemotherapy breast cancer patients are significantly different.It is suggested to depict the user persona before designing weight management programme or mobile health platforms,thus,targeted intervention can be developed and implemented precisely.