8例伯-韦综合征患儿舌部分切除术及舌再造术的护理

Nursing of Children with Beckwith-Weidemann Syndrome Undergoing Partial Glossectomy and Radical Operation for Tongue: An 8-case Study

目的 探讨伯-韦综合征患儿舌部分切除术及舌再造术的护理经验。方法 总结伯-韦综合征患儿8例术后的气道护理,呼吸机辅助通气、监测生命体征、气道湿化、按需吸痰等;导管护理,如固定导管、预防非计划性拔管;并发症预防护理,预防出血、感染;皮肤护理,防止压力性损伤及医用粘胶相关性皮肤损伤;营养支持。结果 8例患儿中,6例患儿留置鼻气管插管时间延长1~2 d,住院天数延长1~2 d。8例患儿经积极治疗护理后病情平稳,顺利出院。术后1个月随访,8例患儿舌体均可回纳至口内,术区恢复良好。结论 舌部分切除术及舌再造术后通过保持气道通畅、预防感染、消除术区肿胀、营养支持等积极护理,能够较好地保障患儿安全,降低治疗风险。

Objective To discuss the nursing experience of children with Beckwith-Weidemann Syndrome undergoing partial glossectomy and radical operation for tongue. Methods We summarized the postoperative nursing of 8 children with Beckwith-Weidemann Syndrome, including airway nursing, such as mechanical ventilation,monitoring of vital signs, airway humidification, and sputum suction as needed;catheter care, such as fixing the catheter and preventing unplanned extubation;prevention and nursing of complications, such as prevention of bleeding and infection;skin care to prevent pressure injury and medical adhesive-related skin injury, and nutritional support. Results Among the 8 children, the time of indwelling nasal tube intubation were prolonged about 1-2 days and the length of stay about 1-2days. After active treatment and nursing, 8 children were in stable condition and discharged.The tongue of 8 children could be put back into the mouth, and the operation area recovered well during the 1-month follow-up.Conclusion Proactive nursing such as keeping airway unobstructed, infection prevention, reduced postoperative swelling and nutritional support are conducive to the safety of children and reducing treatment risk.