社交媒体平台的癌症疾痛叙事与患者自我疗愈研究

Cancer Narratives and Self-healing of Cancer Patients on Social Media Platforms

癌症疾痛及其疗愈已经成为当今社会的一个核心问题。本文以叙事治疗理论为基础,探讨社交媒体如何嵌入癌症疾痛的叙事之中并影响着患者的自我叙述与疗愈。研究发现:患者的疾痛叙事呈现崩溃型向对抗型或交流型转变的结构演化态势;通过对疾痛的媒介化呈现,发现自我独特性以及建构新的故事世界,癌症患者实现了对自我与他人双重关系的确认、疾病的去污名化以及对死亡的解构与重构。社交媒体展现了独特的疾痛叙事治疗功能,在疾痛疗愈及其社会健康体系中具有重要的潜在作用。

Modern disease culture is difficult to describe the complexity of disease pain and patient’s pleomorphic experience. Cancer pain and its treatment have become a core issue in contemporary society. Social media provides a new narrative self-healing space for the world of disease and pain, and plays an important potential role in the media construction and support of the contemporary society’s extensive disease and pain healing and social health system. Based on narrative therapy theory, this paper tries to put forward the concept of self-healing by media narrative, and discusses how the narrative of disease and pain forms a connection through social media, as well as the connection and mechanism between the narrative and self-healing in the context of the continuous embedding of media technology into the treatment process of cancer patients. The results show that the narrative structure of cancer patients’ disease and pain on social media platforms is from collapse type to confrontation type or communication type. By externalizing the problems of disease and pain, promoting self-awakening and constructing new stories, cancer patients have realized the confirmation of the double relationship between themselves and others, the legalization of the disease and the deconstruction and reconstruction of death in the way of "cure".