年轻女性乳腺癌生存者经济毒性体验的质性研究

Qualitative study on the financial toxicity experience of young female breast cancer survivors

目的探索年轻乳腺癌生存者经济毒性的发生原因及影响因素,为制订有效干预措施改善年轻乳腺癌生存者经济毒性提供参考。方法采用描述性质性研究方法,对2021年9—12月于复旦大学附属肿瘤医院乳腺外科随访门诊就诊的29例年轻乳腺癌患者进行访谈,运用Nvivo 12.0质性资料分析软件对资料进行整理分析。结果提炼出4个主题,即癌症治疗的直接费用是经济毒性最主要的来源、间接费用对癌症患者经济毒性的影响不容忽视、癌症及治疗的长期影响进一步加剧经济毒性、癌症相关经济毒性受到其他多种因素影响。结论多种原因影响年轻乳腺癌生存者的经济毒性体验。未来应全面评估年轻乳腺癌生存者经济毒性及其发生风险,针对年轻女性乳腺癌患者的特征提供经济毒性的干预和支持。

Objective To explore the causes and influencing factors of financial toxicity in young breast cancer survivors,and to provide evidence for intervention program development to improve financial toxicity in young breast cancer survivors.Methods Using descriptive qualitative research methods,29 young breast cancer patients from September to December 2021 in Breast Surgery Follow-up Clinic of Fudan University Shanghai Cancer Center were interviewed.The Nvivo 12.0 qualitative data analysis software was used to analyze the data.Results Four themes were extracted as following,direct cost of cancer treatment was the primary cause of financial toxicity,indirect costs related to cancer and treatment cannot be ignored,long-term effects of cancer and treatment further exacerbated financial toxicity,and cancer-related financial toxicity was also influenced by a variety of other factors.Conclusions Multiple causes affected the experience of financial toxicity in young breast cancer survivors.The occurrence and risks of financial toxicity in young breast cancer survivors should be assessed.Intervention and support should be provided to meet the needs of young breast cancer survivors.