乳腺癌术后上肢淋巴水肿患者自我管理体验的质性研究

Self-management experiences of patients with upper limb lymphedema after breast cancer surgery:a qualitative study

目的 了解乳腺癌术后上肢淋巴水肿患者自我管理中的体验和感受,为临床制订解决方案提供参考。方法 采用质性研究方法对15例乳腺癌术后上肢淋巴水肿患者进行半结构式访谈,采用Colaizzi7步分析法分析资料。结果 提炼出6个主题,包括缺乏自我管理知识、思想上未引起足够重视、管理方式的差异化、自我管理过程中存在诸多障碍、自我管理中的情绪问题和社会支持不足。结论 乳腺癌术后上肢淋巴水肿患者在自我管理过程中存在较多问题,医护人员应帮助患者纠正对疾病的错误认知及处理方式,树立良好的自我管理行为与习惯,重视患者由自我管理产生的心理问题,联合家庭和社会共同提高患者的自我管理能力。

Objective To understand the experiences and feelings of self-management in patients with upper limb lymphedema after breast cancer surgery, and to provide a reference for developing clinical intervention.Methods Semi-structured interviews were conducted among 15 postoperative breast cancer patients by qualitative research, and the Colaizzi seven-step analysis was utilized to analyze the interview data.Results Six themes were extracted: lack of self-management knowledge, not paid enough attention in their mind, difference in management style, many obstacles in the process of self-management, emotional problems in self-ma-nagement and insufficient social support.Conclusion There are many problems in the self-management process of patients with upper limb lymphedema after breast cancer surgery.Medical staff should help patients correct their wrong cognition and coping strategies of the disease, establish good self-management behaviors and habits, pay attention to their mental problems caused by self-management, and jointly improve patients′ self-management ability with family and society.