中青年淋巴瘤患者社会回归体验的质性研究

Experience of young and middle-aged lymphoma patients returning to society:a qualitative study

目的深入了解中青年淋巴瘤患者社会回归的真实体验。方法采用目的抽样法,选取2021年8—9月南京医科大学第一附属医院血液科收治的17例中青年淋巴瘤患者为研究对象。采用现象学研究方法与患者面对面深入访谈。应用Colaizzi 7步分析法归纳分析并提炼主题。结果共提炼出3个一级主题和10个二级主题,其中社会回归的意愿包括社会回归意愿坚定和社会回归态度消极;社会回归的范围包括重返工作、人际交往、家庭职责、休闲娱乐及生活方式;社会回归的影响机制包括疾病和治疗因素、精神因素、外在支持和经济能力。结论中青年淋巴瘤患者的社会回归体验是一个多方面的动态改变过程,未来有必要进一步探讨此类群体的社会回归现状,深入挖掘异质性的影响因素和变化轨迹。

Objective To deeply understand the real experience of young and middle-aged lymphoma patients returning to society.Methods From August to September 2021,17 young and middle-aged lymphoma patients admitted to the Department of Hematology of the First Affiliated Hospital with Nanjing Medical University were selected as the research object by objective sampling.Phenomenological research method was using to conduct face-to-face in-depth interviews.Colaizzi 7-step analysis method was used to summarize,analyze and refine the theme.Results A total of 3 first-level themes and 10 second-level themes were extracted.Among them,the willingness to return to society included firm willingness of social return and negative attitude of social return.The scope of social return included returning to work,interpersonal communication,family responsibilities,leisure and entertainment and lifestyle.The influencing mechanism of social return was composed of disease and treatment factors,mental factors,external support and economic capacity.Conclusions The experience of young and middle-aged lymphoma patients returning to society is a dynamic change process in many aspects.In the future,it is necessary to further explore the status quo of social return of such groups and explore the influencing factors and change tracks of heterogeneity.