炎症性肠病患者支持性照护需求的质性研究

A qualitative research on supportive care needs of patient with inflammatory bowel disease

目的深入了解炎症性肠病患者支持性照护需求,旨在为制订炎症性肠病患者支持性照护策略提供依据。方法基于支持性照护需求框架,通过描述性质性研究,采用目的抽样法,选取2021年8—11月在南京医科大学第一附属医院住院的17例炎症性肠病患者进行半结构式访谈,运用定向内容分析法进行访谈资料分析。结果最终识别为5个类属,均在支持性照护需求框架内,包括生理需求、信息需求、实际(日常生活)需求、情感与社会支持需求、心理与精神需求。结论未来应以炎症性肠病患者自身需求为依据,从医院、家庭、病友等多层面出发,实施针对性的沟通教育和多元的社会支持。

Objective To deeply explore the supportive care needs of patients with inflammatory bowel disease,in order to provide reference for the development of supportive care strategies.Methods A qualitative description was conducted based on the supportive care needs framework.Objective sampling method was used to select 17 patients with inflammatory bowel disease from the First Affiliated Hospital with Nanjing Medical University from August to November 2021 for semi-structured in-depth interview and directed content analysis was used to analyze the interview data.Results The final analysis yielded a total of 5 categories.These were physiological need,information need,practical(daily life)need,emotional and social support need,psychological and spiritual needs.They were all within the framework of supporting care needs.Conclusions In the future,targeted education and diversified social support should be implemented based on the needs of patients with inflammatory bowel disease and from the perspectives of hospital,family members and peers.