孤独症儿童父母的在线社会支持

Online social support for parents of children with autism

目的:评估孤独症儿童父母在线社会支持的获得情况。方法:选择在线社区内成员的社会网络位置以及贴文文本特征作为模型指标,构建在线社会支持量化评估模型。选取2个孤独症微博超话社区进行分析,2个育儿微博超话社区作为对照,纳入符合条件的孤独症儿童父母408名,普通儿童父母550名。利用社会网络分析法和文本分析法探究社会网络位置以及贴文文本特征,通过评估模型探析孤独症儿童父母在线社会支持的获得情况。结果:社会网络分析结果显示,在线社区内孤独症儿童父母的接近中心度高于普通儿童父母(P<0.001);文本分析法结果显示,不同社区的文本特征差异无统计学意义(P>0.05);模型评估结果显示,不同社区在线社会支持得分差异有统计学意义(P<0.001),孤独症儿童父母在线社会支持得分均高于普通儿童父母(均P<0.001)。结论:孤独症儿童父母在社区内形成了紧密的团体,比普通儿童父母获得了更多的在线社会支持。

Objective:To evaluate the online social support obtained by parents of children with autism.Methods:The social network location and post text features of the members in the online community were selected as model indicators to build a quantitative evaluation model of online social support.Two autism microblog communities were selected for analysis,and two parenting microblog communities were used as controls.Totally 408 parents of children with autism and 550 parents of normal children were included.Social network analysis and text analysis methods were used to explore the location of social networks and the characteristics of post texts,and the evaluation model was used to analyze the online social support acquisition of parents of autistic children.Results:The results of social network analysis showed that the closeness centrality of parents of autistic children in online communities was significantly higher than that of parents of normal children(P<0.001).The results of text analysis showed that there were no significant differences in text characteristics among different communities(P>0.05).The model evaluation results showed that the online social support scores of different communities were significantly different(P<0.001),and the online social evaluation scores were higher in parents of children with autism than in parents of normal children(Ps<0.001).Conclusion:Parents of children with autism form tight groups in the community and receive more online social support than parents of normal children.