神经源性膀胱患者使用自我管理微信小程序体验的质性研究

User experience of a self-management WeChat applet for patients with neurogenic bladder:A qualitative approach

目的了解神经源性膀胱患者使用自我管理微信小程序的感知好处,并识别阻碍其使用的关键因素。方法采用质性研究设计,通过目的抽样选取深圳市2所三级甲等医院康复科住院并试用自我管理微信小程序2周的19例神经源性膀胱患者进行半结构化访谈,运用内容分析法进行资料分析。结果患者认为该自我管理程序是有帮助的,同时存在使用的障碍因素。3个感知益处包括:方便、灵活、直观;促进患者自我管理;为照护者和家庭成员提供指导。阻碍患者使用该程序的障碍因素包括:患者消极的膀胱自我管理态度和患者特征;对移动医疗风险的担忧;小程序升级的必要性。结论神经源性膀胱患者使用微信小程序进行自我管理是可行的,可以满足患者在住院期间和出院后获取信息的需求。研究发现的自我管理程序使用促进和障碍因素,为医疗机构实施移动医疗干预措施促进神经源性膀胱患者的自我管理提供了有价值的信息。

Objectives This study aimed to determine patients’perceived benefits of a WeChat applet for self-management of patients with neurogenic bladder(NGB)and identify the key factors hindering their adoption.Methods In the qualitative study,19 NGB patients were invited for semi-structured interviews.They were hospitalized in the rehabilitation departments of two tertiary hospitals in Shenzhen and tried out the self-management applet for two weeks.Data were analyzed using the content analysis method.Results The results indicated that the WeChat applet of self-management was helpful and embraced by the NGB patients.Three perceived benefits were identified 1)being accessible,flexible,and intuitive to users,2)driving bladder self-management,and 3)directing the way for care partners and family members.Challenges hindering the adoption of the applet included 1)negative attitudes of patients towards bladder self-management and patient characteristics,2)concerns about the risks of mHealth,and 3)the necessity of applet upgrading.Conclusion This study showed feasibility of the WeChat applet for self-management among NGB patients to meet their needs for access to information during hospitalization and after discharge.The study also identified facilitators and barriers to patient use,providing valuable information for healthcare providers to implement mHealth interventions to promote self-management among NGB patients.