闭塞性细支气管炎患儿家庭生活质量现状调查及影响因素分析

Investigation on family life quality of children with bronchiolitis obliterans and analysis of influencing factors

目的调查闭塞性细支气管炎(BO)患儿家庭生活质量现状,讨论分析其影响因素。方法采用便利抽样法,选取2018年1月至2021年12月在湖南省儿童医院呼吸内科治疗的212例BO患儿和家长作为研究对象,采用一般情况调查表、家庭生活质量量表、父母用应对方式量表进行调查,应用单因素分析、Pearson相关性分析、多元线性回归分析探讨其影响因素。结果BO患儿家庭生活质量得分为171.00(166.00,181.00)分,整体处于偏低水平。不同患儿年龄、是否独生、疾病病程、父母受教育程度及职业状况、家庭月收入、首次用药时间、家庭居住地的BO患儿家庭生活质量得分比较,差异有统计学意义(P<0.05)。多元线性回归分析显示,家庭居住地、父母受教育程度、疾病病程、父母应对方式是BO患儿家庭生活质量的影响因素(P<0.05)。结论BO患儿家庭生活质量有待进一步提高,医护人员应对农村地区、患儿父母文化程度较低及病程较短的患儿家庭予以重视,对其进行BO疾病健康知识普及和心理疏导,并对其家庭合作进行指导。同时,建议政府积极开展家庭互助服务及社会公益救助服务,为BO家庭提供健康教育、临时性家庭照顾、财政支持等,进一步提高BO患儿家庭生活质量。

Objective To investigate the family life quality of children with bronchiolitis obliterans(BO),to discuss and analyze its influencing factors.Methods A total of 212 children with BO and their parents who were treated in the Department of Respiratory Hunan Children’s Hospital from January 2018 to December 2021 were selected as research objects by convenience sampling method.General situation questionnaire,family quality of life scale and parents coping style scale were used to investigate.Single factor analysis,Pearson correlation analysis and multiple linear regression analysis were used to explore the influencing factors.Results The score of family life quality of BO children was 171.00(166.00,181.00)points,which was generally low.There were statistically significant differences in family life quality scores of BO children with different ages,whether they were the only child,course of disease,parents’education and occupational status,monthly family income,time of first medication,and family residence(P<0.05).Multiple linear regression analysis showed that family residence,parents’education level,disease course,and parents’coping style were influencing factors of family life quality of BO children(P<0.05).Conclusion The family life quality of children with BO needs to be further improved.Medical staff should pay attention to families of children with BO in rural areas,parents with low education level and the short course of disease,popularize health knowledge of BO disease and psychological counseling for them,and provide guidance for family cooperation.At the same time,it is suggested that the government actively carry out family mutual assistance services and social welfare assistance services,and provide health education,temporary family care and financial support for BO families,so as to further improve the quality of life of families with BO children.