癫痫患儿照顾者知识现状与教育需求的调查分析

Investigation and analysis of knowledge status and educational needs of caregivers for children with epilepsy

目的明确癫痫患儿照顾者的癫痫知识水平并分析其影响因素,调查照顾者的教育需求及对远程教育方式的接受度,为临床开展远程教育干预提供参考依据。方法2022年3—9月,采用便利抽样法选取徐州市儿童医院神经内科门诊与病房的221名癫痫患儿照顾者进行横断面调查。应用一般资料调查表、癫痫知识问卷、癫痫护理知识需求问卷及远程护理接受度问卷调查照顾者的一般资料、知识现状与教育需求等,应用多元线性回归分析知识水平的影响因素。结果癫痫患儿照顾者知识总均分为(15.68±6.43)分。癫痫患儿病程、按时服药、照顾者学历及家庭人均月收入是癫痫知识问卷得分的影响因素(P<0.05)。94.12%(208/221)~96.38%(213/221)的照顾者教育需求度高,其中癫痫发作期间的安全指导知识需求度最高。照顾者对远程教育方式接受度一般,各条目人群接受度为34.39%(76/221)~71.95%(159/221)。结论癫痫患儿照顾者的癫痫知识有待提高,医疗机构应根据照顾者不同特征,从可干预的影响因素出发制订针对性教育计划;照顾者的教育需求高,医护人员应加大健康教育;依托远程平台给予健康教育前应充分了解照顾者对平台的态度,最终使其掌握疾病知识,强化其疾病管理能力,从而提高患儿生命质量。

Objective To determine the level of epilepsy knowledge of caregivers for children with epilepsy and analyze its influencing factors,and investigate caregivers'educational needs and their acceptance for remote education,in order to provide reference for clinical telenursing education.Methods From March to September 2022,221 caregivers of epileptic children in the outpatient department and ward of neurology department of Xuzhou Children's Hospital were recruited by convenient sampling method for cross-sectional investigation.The status of caregivers'knowledge and educational needs were investigated by the general information questionnaire,epilepsy knowledge questionnaire,epilepsy knowledge needs questionnaire and telenursing acceptance questionnaire,and the influencing factors of knowledge level were analyzed by multiple linear regression.Results The average score of epilepsy knowledge of caregivers was(15.68±6.43)points.The course of disease,taking medicine on time,education background and monthly income of caregivers were the influencing factors of caregivers'knowledge level,and the difference was statistically significant(P<0.05).94.12%(208/221)-96.38%(213/221)of the caregivers had high educational needs,and they had the highest demand for safety guidance during seizures.Caregivers'acceptance of remote education was moderate,ranging from 34.39%(76/221)to 71.95%(159/221).Conclusions Caregivers'epilepsy knowledge needs to be improved.Medical institutions should formulate education plans according to the different characteristics of caregivers.Caregivers have a high demand for nursing knowledge,and medical staff should increase health education.Before giving health education based on remote nursing platform,we should fully understand the attitude of caregivers to the platform,so that they can master disease knowledge,strengthen their disease management ability,and improve the quality of life of children.