过敏性紫癜患儿自我感受负担的影响因素分析

Analysis of influencing factors of self-perceived burden in children with Henoch-Schoenlein purpura

目的调查过敏性紫癜患儿的自我感受负担状况,分析家庭关怀度、心理韧性与自我感受负担的关系,探讨自我感受负担的影响因素。方法选取2018年7月—2021年6月蚌埠市第一人民医院小儿科收治的133例过敏性紫癜患儿作为研究对象,采用家庭关怀度量表(APGAR)、慢性病儿童韧性量表(CICRS)和自我感受负担量表(SPBS)对患儿及家属进行调查。自我感受负担的单因素分析应用成组t检验或方差分析,家庭关怀度、心理韧性及自我感受负担相关分析采用Pearson相关分析,自我感受负担的影响因素采用多元线性回归分析。结果患儿SPBS总分为(31.06±8.18)分,自我感受负担位于中度负担水平。不同年龄、性格特征、家庭收入、主要照顾者角色、病程、住院次数和是否伴有肾脏损伤的患儿SPBS评分比较,差异均有统计学意义(均P<0.05);家庭关怀度、心理韧性和自我感受负担各维度评分及总分均呈负相关关系(均P<0.01)。住院次数、是否合并肾脏损伤、家庭关怀度和心理韧性是过敏性紫癜患儿自我感受负担的影响因素(均P<0.05)。结论过敏性紫癜患儿存在不同程度自我感受负担,家庭关怀、心理韧性与自我感受负担有一定的关联。护理人员应重视家庭情感干预,开展心理行为疏导,改善患儿自我感受负担。

Objective To investigate the status of self-perceived burden in children with Henoch-Schoenlein purpura,analyze the relationship with family care,mental toughness and self-perceived burden,and explore the influencing factors of self-perceived burden.Methods A total of 133 children with Henoch-Schoenlein purpura treated in the Pediatrics Department of the First People's Hospital of Bengbu from July 2018 to Jun 2021 were selected as the research objects.The children and their families were investigated with family care scale(APGAR),chronic illness children's resilience scale(CICRS)and self-perceived burden scale(SPBS).Two-sample t-test and ANOVA were used for univariate analysis of self-perceived burden.Pearson correlation analysis was used for correlation analysis of family care,psychological resilience and self-perceived burden.Multiple linear regression was used for influencing factors of self-perceived burden.Results The total SPBS score of patients was(31.06±8.18)points,and the self-perceived burden was at the moderate level.There were statistically significant differences in SPBS scores among children with different ages,personality characteristics,family income,main caregiver role,course of disease,number of hospitalizations and whether by kidney injury(P<0.05).There was negative correlation between family care,mental toughness and self-perceived burden of each dimension and total score(all P<0.01).The number of hospitalizations,kidney injury,family care aall nd mental toughness were the influencing factors of the self-perceived burden of children with Henoch-Schoenlein purpura(all P<0.05).Conclusion Children with Henoch-Schoenlein purpura have different degrees of self-perceived burden,and family care,mental toughness are related to the self-perceived burden to a certain extent.Nursing staff should pay attention to family emotional intervention,carry out psychological behavior counseling,and improve children's self-perceived burden.