摘要
目的克罗恩病因其无法治愈及肠道症状特点,不可避免地影响了患者生活,并可能导致病耻感。本研究旨在调查克罗恩病患者病耻感的现状及影响因素。方法采用便利抽样的方法,于2020年10月至2021年3月对广州市某三级甲等医院消化内科病房的146例克罗恩病患者进行问卷调查。采用自行设计的一般资料问卷、社会影响量表(Social Impact Scale,SIS)、炎症性肠病自我效能量表(Inflammatory Bowel Disease-Self-Eficacy Scale,IBD-SES)及社会支持评定量表(Social Support Rating Scale,SSRS)分别对克罗恩病患者的一般资料、病耻感现状、自我效能和社会支持水平进行调查。采用多重线性回归分析对克罗恩病患者病耻感的影响因素进行分析。结果克罗恩病患者病耻感得分为(58.14±10.74)分,处于中等水平。85.6%(125/146)的克罗恩病患者存在中重度的病耻感。多重线性回归分析结果显示,患者感知到的社会公众对疾病的了解情况、家庭人均月收入、年龄、自我效能为克罗恩病患者病耻感的影响因素,可解释病耻感总变异的52%。结论绝大部分克罗恩病患者存在中重度的病耻感。感知到的社会公众对疾病的了解少、家庭人均月收入低、年龄≥40岁、自我效能低的克罗恩病患者表现出更高程度的病耻感。
Objectives:Crohn’s disease is an incurable disease characterized by unpredictable intestinal symptoms,which unavoidably affect patients’lives and contribute to feelings of stigma.This study aimed to explore the status and its correlates of stigma among patients with Crohn’s disease.Methods:Using a convenience sampling,146 hospitalized patients with Crohn’s disease were recruited in a tertiary hospital in Southern China from October 2020 to March 2021.The participants were assessed by demographic and disease-related questionnaires,the Social Impact Scale(SIS),Inflammatory Bowel Disease-Self-Efficacy Scale(IBD-SES),and Social Support Rating Scale(SSRS).Multivariate linear regression analysis was conducted to explore the influencing factors of stigma among patients with Crohn’s disease.Results:The mean SIS score was 58.14±10.74,representing a moderate effect of stigma,and 85.6%(125/146)of the patients experienced moderate to high levels of stigma.The multiple linear regression analysis showed that perceived public awareness of the disease,family income,age,and self-efficacy were the main influencing factors of stigma,which could explain 52%of the total variation of stigma among patients with Crohn’s disease.Conclusion:Stigma among patients with Crohn’s disease is influenced by perceived public awareness of the disease,family income,age,and self-efficacy.Interventions aimed at improving self-efficacy and public awareness should be considered to alleviate the level of stigma,especially for those aged 40 years or older or low-income patients.
作者
何丹丹
何兰珍
袁艺娟
黄玲丽
肖琦
叶新梅
张俊娥
Dandan He;Lanzhen He;Yijuan Yuan;Lingli Huang;Qi Xiao;Xinmei Ye;Jun-E Zhang(Department of General Surgery(Colorectal Surgery),The Sixth Affiliated Hospital,Sun Yat-Sen University,Guangzhou,Guangdong,China;Guangdong Provincial Key Laboratory of Colorectal and Pelvic Floor Diseases,The Sixth Affiliated Hospital,Sun Yat-Sen University,Guangzhou,Guangdong,China;Biomedical Innovation Center,National Key Clinical Discipline,Guangdong Provincial Clinical Research Center for Digestive Diseases,The Sixth Affiliated Hospital,Sun Yat-Sen University,Guangzhou,Guangdong,China;School of Nursing,Sun Yat-Sen University,Guangzhou,Guangdong,China)
基金
approved by the Ethics Committee of the Sixth Affiliated Hospital of Sun Yat-sen University(NO.2021ZSLYEC-110).