痴呆家庭照顾者痴呆精神行为症状照护体验的质性研究

Qualitative study of family caregivers′ caregiving experience of behavioral and psychological symptoms of dementia

目的:了解痴呆家庭照顾者在应对痴呆病人痴呆精神行为症状中的体验。方法:采用目的抽样法选取15名居家痴呆病人的主要照顾者进行半结构式访谈。结果:最终形成4个主题。缺乏对痴呆精神行为症状的了解和理解;缺乏痴呆精神行为症状的非药物管理指导;需要专业、个体、详细的支持性照护方案;需要便捷的支持性照护交流平台。结论:痴呆照顾者在应对病人精神行为症状时面临挑战和压力,专业照护人员可从个体化方案和便捷平台等方面入手,以提高家庭照顾者对痴呆精神行为症状的照护和应对能力,最终改善病人症状、减轻照护负担。

Objective:To understand the experience of dementia family caregivers when coping with the behavioral and psychological symptoms of dementia.Methods:A total of 15 primary caregivers of dementia patients at home were selected for semi-structured interviews by target sampling method.Results:Four themes were formed.Lack of knowledge and understanding of the behavioral and psychological symptoms of dementia;lack of guidance for non-pharmacological interventions of behavioral and psychological symptoms of dementia;the need for professional,individual,detailed supportive care programs;the need for easy access to supportive care.Conclusion:Dementia caregivers face challenges and pressures when coping with behavioral and psychological symptoms of dementia.Professional caregivers can improve family caregivers′ability to care and cope with behavioral and psychological symptoms of dementia through individualized programs and convenient platforms,and ultimately improve patients′symptoms and reduce the burden of care.