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天赋基因检测的儿童脆弱性研究

Study on Vulnerability of Children in Talent Genetic Testing
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摘要 脆弱性是人与生俱来又无法根除的现实存在,不同情境会加剧或诱发不同的脆弱性。通过梳理脆弱性的含义,辨析天赋基因检测情境中儿童的特殊脆弱性表现与归因,包括儿童自身的固有脆弱性,源于天赋基因检测、教育环境的情境脆弱性,以及未成年人保护的诱发脆弱性;提出儿童天赋基因检测应遵循责任原则、不伤害原则和允许原则,以保护儿童在检测中免受额外伤害,避免加剧儿童的脆弱性。 Vulnerability is an inherent and ineradicable reality,and different contexts can exacerbate or induce different manifestations of vulnerability.By sorting out the meaning of vulnerability and identifying particular manifestations and attributions of children vulnerability in talent genetic testing situations,including the inherent vulnerability of children themselves,the situational vulnerability derived from talent genetic testing and educational environment,as well as the pathogenic vulnerability from the protection of minors.It was proposed that talent genetic testing of children should be guided by the principles of responsibility,no harm,and permission,so as to protect children from additional harm during testing and avoid exacerbating their vulnerability.
作者 赵梦蝶 梁立智 ZHAO Mengdie;LIANG Lizhi(College of Medical Humanities,Capital Medical University,Beijing 100069,China)
出处 《中国医学伦理学》 2023年第10期1097-1102,共6页 Chinese Medical Ethics
基金 北京市社会科学基金一般项目“人体基因检测在中国应用的伦理规制研究”(19ZXB005)。
关键词 天赋基因 基因检测 儿童脆弱性 Talent Genes Genetic Testing Vulnerability of Children
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