护患互动一体化APP在长效奥曲肽治疗的神经内分泌肿瘤患者中的应用

Application of nurse-patient interaction integrated APP in patients with neuroendocrine tumors treated with long-acting octreotide

目的研发护患互动一体化APP“NET之家”,对接受长效奥曲肽治疗的神经内分泌肿瘤(NENs)患者进行精细化照护和随访管理。方法“NET之家”APP包括患者端、医护端、管理端3个端口,NENs患者出院后通过APP及时全面地反馈不良反应及不适症状等发生情况,医护人员及时在线指导患者处理。结果“NET之家”APP应用1年有45例患者(每28 d注射1次长效奥曲肽)注册,共收集到微型营养评价量表145份、肿瘤患者生存质量评分量表147份、疼痛数字评价量表102份、注射长效奥曲肽不良反应调查表103份、自我护理能力量表102份、抑郁自评量表111份、焦虑自评量表102份;医护人员通过APP处理不良反应5例,及时处理严重不良反应1例(该患者最终停用长效奥曲肽治疗)。相较于未使用APP的NENs患者,使用APP的NENs患者焦虑评分下降,差异有统计学意义(P<0.05),且满意度、生存质量评分提高,非计划入院人次减少,但差异无统计学意义(P>0.05)。结论“NET之家”APP通过多个模块功能实现精细化、个性化护理干预,可实现对NENs患者的延续性居家护理,缓解患者焦虑情绪,提升患者自我管理能力、生活质量和治疗依从性。

Objective To develop a nurse-patient interaction integrated APP"NET Home"to provide detailed care and follow-up management for patients with neuroendocrine tumors(NENs)treated with long-acting octreotide.Methods"NET Home"APP included three ports:patient side,medical side and management side.After discharge,NENs patients timely and comprehensive fed back on adverse reactions and discomfort symptoms through APP,and medical staff timely guided patients to deal with them online.Results At 1 year after"NET Home"APP application,45 patients registered(injected with long-acting octreotide once every 28 days).A total of 145 copies of Micro-nutrition Evaluation Scales,147 Tumor Patients′Quality of Life Rating scales,102 Pain Digital Evaluation Scales,103 Adverse Reactions Questionnaire of Long-acting Octreotide Injection,102 Self-care Ability Scales,111 Self-rating Scales for depression and 102 Self-rating Scales for anxiety were collected.The medical staff treated 5 cases of adverse reactions by APP,and gave timely handling to 1 case of severe adverse reactions(the patient eventually stopped long-acting octreotide therapy).Compared with NENs patients who did not use APP,anxiety scores of NENs patients who used APP decreased(P<0.05);[JP3]their satisfaction scores and quality of life scores were improved,and the number of unplanned admissions decreased,but the differences showed no statistically significant(P>0.05).Conclusion"NET Home"APP can realize refined and personalized nursing intervention through multiple module functions,which can realize continuous home care for NENs patients,relieve their anxiety and improve their self-management ability,quality of life and treatment compliance.