尿道下裂患儿照护者照顾负担的研究进展

Research progress on care burden of caregivers for children with hypospadias

尿道下裂是一种常见的先天性泌尿生殖系统畸形,患者需要反复接受手术治疗和长期的护理。尿道下裂患儿及照护者的身心健康、家庭经济状况以及社会支持等因素对尿道下裂患儿照护者的照顾负担产生了巨大影响。在不同的照护阶段中,这些因素的作用也各不相同,并且会随着时间的推移而发生动态变化。照顾负担涉及整个诊疗和康复期间,甚至会延续到患儿的青春期,对照护者的身心健康造成了不良影响,对患儿的康复也不利。因此,尿道下裂患儿照护者照顾负担的研究一直是护理学和医学领域的热点之一,并涉及相关政策及社会问题。本文对尿道下裂患儿照护者的照顾负担进行综述,为减轻照护者照顾负担提供借鉴。本文就以下几个角度对研究进行总结:照顾负担的相关概念与研究进展、尿道下裂患儿照护者照顾负担的影响因素及干预措施等。

Hypospadias is a common congenital malformation of the genitourinary system,and patients need repeated surgical treatment and long-term care.Factors such as physical and mental health,family economic status and social support of children with hypospadias and their caregivers have a huge impact on the care burden of caregivers for children with hypospadias.The role of these factors varies in different stages of care and can dynamically change over time.Care burden is involved in the entire diagnosis,treatment,and rehabilitation period,and even extends to the child’s adolescence,which has a negative impact on the physical and mental health of the caregivers and is also detrimental to the child’s recovery.Therefore,the research on the care burden of caregivers for children with hypospadias has always been one of the hot spots in the field of nursing and medicine and involves related policy and social issues.This article reviews the care burden of caregivers for children with hypospadias,providing a reference for reducing the care burden of caregivers.This article summarizes the research from the following perspectives:the related concepts and research progress of care burden,the influencing factors and intervention measures of care burden of caregivers for children with hypospadias,etc.