幼年特发性关节炎患儿报告结局评估工具研究进展

Research progress on assessment tools of patient-reported outcomes for children with juvenile idiopathic arthritis

对国内外开发的幼年特发性关节炎患儿报告结局评估工具进行综述,概述幼年特发性关节炎患儿普适性和特异性自我报告结局评估工具的主要内容、应用范围、应用效果及局限性,旨在为我国幼年特发性关节炎患儿报告结局评估工具开发、患儿症状管理、精准评估以及临床决策的实施提供参考。

This paper reviews the assessment tools of patient-reported outcomes developed domestically and internationally for children with juvenile idiopathic arthritis(JIA).It presents an overview of the main contents,application scope,effectiveness,and li-mitations of generic and specific assessment tools,aiming to provide a reference for the development of assessment tools of patient-reported outcomes,symptom management,precise evaluation,and clinical decision-making for JIA children in China.