帕金森病患者姑息照护需求的范围综述

A scoping review of palliative care needs of patients with Parkinson's disease

目的对帕金森病患者姑息照护需求相关文献进行范围综述,明确帕金森病患者姑息照护需求及其影响因素。方法系统检索PubMed、Embase、Cochrane Library、Web of Science、ProQuest、OpenGrey、Scopus、中国知网、万方数据库和中国生物医学文献数据库中有关帕金森病患者姑息照护需求的文献,检索时限均为建库至2023年4月20日,对纳入文献进行汇总分析。结果纳入文献15篇。帕金森病患者的姑息照护需求较高,主要影响因素包括个人因素、疾病因素、医护人员因素、照护者因素、场所和政策因素。结论帕金森病患者姑息照护需求受多方面因素的影响。未来的研究重点在于培养帕金森病姑息照护专业医护人员、构建基于证据的姑息照护需求评估标准和护理质量标准、探索院外姑息照护的延续模式等方面,为帮助医护人员识别帕金森病患者的姑息照护需求,制订需求评估和护理质量标准提供参考。

Objective To conduct a scoping review of relevant literature on palliative care needs of patients with Parkinson's disease,so as to clarify the palliative care needs of patients with Parkinson's disease and its influencing factors.Methods Literature on palliative care needs of patients with Parkinson's disease was systematically searched in PubMed,Embase,Cochrane Library,Web of Science,ProQuest,OpenGrey,Scopus,China National Knowledge Infrastructure,Wanfang database and China Biology Medicine disc.The search period was from the establishment of the databases to April 20,2023,and the included articles were summarized and analyzed.Results A total of 15 articles were included.The palliative care needs of patients with Parkinson's disease were high,and the main influencing factors included personal factors,disease factors,medical staff factors,caregiver factors,place factors and policy factors.Conclusions The demand for palliative care in Parkinson's disease patients was influenced by multiple factors.Future research will focus on training palliative care professionals,establishing evidence-based palliative care needs assessment standards and nursing quality standards,and exploring the continuation mode of out-of-hospital palliative care,so as to provide references for helping medical staff identify palliative care needs of patients with Parkinson's disease and formulating needs assessment and nursing quality standards.