基于时机理论的延续性护理在学龄期癫痫患儿中的应用研究

Application of continuous nursing for school-age children with epilepsy based on timing theory

目的探讨基于时机理论的学龄期癫痫儿童延续性护理的应用效果。方法采用随机抽样法,选取2022年10月—2023年3月无锡市儿童医院神经内科收治的80例学龄期癫痫患儿及其主要照护者为研究对象,将2022年10月—2022年12月住院的40例患儿作为对照组,2023年1月—2023年3月住院的40例患儿为干预组。对照组采用神经内科常规护理,试验组在对照组基础上实施基于时机理论的延续性护理。将疾病过程划分为诊断期、治疗期、准备期、康复期四个阶段,根据疾病不同阶段的需求分别从疾病认知、情感支持、正确照护、安全防护、心理调适、康复训练等方面进行干预,提高照护者对疾病的认知,减轻照护者负担,促进患儿的康复。采用癫痫疾病健康知识问卷、Zarit照顾者负担量表、儿童生存质量普适性核心量表分别于入院时、出院前和出院后3个月比较两组癫痫患儿家属疾病相关知识的掌握情况、照顾者负担、患儿生活质量。结果试验组照顾者负担显著降低,差异具有统计学意义(P<0.05);照顾者对各阶段疾病相关知识的掌握程度、癫痫患儿生活质量显著提高,差异具有统计学意义(P<0.05);干预组和对照组不同时间点的护理需求评估量表总分比较,差异具有统计学意义(均P<0.05)。结论对学龄期癫痫患儿实施基于时机理论的延续性护理可以有效降低照顾者的照顾负担,提高照顾者的疾病相关知识掌握水平,提高其照护能力,改善癫痫患儿的生活质量。

Objective Based on"timing it right",the application effect of the continuous nursing program in school-age children with epilepsy.MethodIssA total of 80 epileptic children and primary caregiver who were admitted to the Department of Neurology of Wuxi a third class A children's hospital from October 2022 to March 2023 were selected as the research objects,and were divided into experimental group and control group with 40 cases each by convenience sampling.The control group was given routine care,and the intervention group was given a continuous nursing for school-age children with epilepsy based on timing theory.The continuous nursing process was divided into four stages:diagnosis stage,treatment stage,preparation stage,and convalescence stage.According to the needs of the different stages of the disease,In each stage,the intervention was carried out from disease cognition,emotional support,Correct care,psychological adjustment,rehabilitation training.TO Reduce the burden on caregivers and promote the recovery of patients.The results of Knowledge of the disease,burden of Caregiver and quality of life were compared between the two groups before intervention,before discharge and Three months after discharge through Epileptic disease health knowledge questionnaire,Zarit Care-giver Burden Interview,PedsQTM4.0.Results After intervention,The degree of seizures-related knowledge mastered by the main caregivers of children with epilepsy,the quality of life were significantly improved(all P<0.05).Conclusion The implementation of the continuity nursing plan based on the timing theory can improve the knowledge level of the main caregivers of epilepsy children,improve their caring ability,and improve the quality of life of epilepsy children.