脊髓损伤患儿父母照顾体验的质性研究

Parental care experience of children with spinal cord injury:a qualitative study

目的深入了解脊髓损伤患儿父母的照顾体验,为促进其身心健康提供参考。方法采用现象学研究方法,以立意抽样法抽取11名脊髓损伤患儿的父母进行半结构化访谈,运用Colaizzi分析法归纳主题。结果提炼出4个主题,分别为承受照顾负荷、心理体验复杂、适应角色改变并提高照顾技能、渴望家庭和社会支持。结论脊髓损伤患儿父母的照顾负荷较重,存在负性心理,医护人员需重视评估患儿父母照顾感受,并提供积极的心理干预指导,必要时提供适当的社会支持,以减轻其照顾负荷,改善其心理状况。

Objective To deeply understand the parental care experience of children with spinal cord injury(SCI),so as to provide a reference for promoting their physical and mental health.Methods A phenomenological research method was used to select 11 parents of children with SCI by using purposive sampling for semi-structured interviews,and the Colaizzi analysis was utilized to refine themes.Results Four themes were extracted:bearing the burden of caring,complex mental experience,adapting role change and improving caring skills,desiring family and social support.Conclusion Parents of children with SCI suffer from heavy care burden and negative psychological emotion,so medical staff should pay attention to assessing their care experience,and provide positive psychological adjustment and appropriate social support when necessary,so as to alleviate their care burden and improve their mental health.