创新模式推动孤独症支持体系高质量发展——基于福建的案例研究

Innovating Models to Promote High-quality Development of Autism Support System——A Case Study of Fujian Province

孤独症发生率持续上升是全球共同面临的重大挑战,我国孤独症患者群体超过1000万人,给相关的医疗康复体系带来巨大压力和急迫需求。本文对我国孤独症支持服务体系和政策链条的核心短板及瓶颈进行了诊断识别,并详细调研了福建独具特色的工作模式,尤其深度分析了这一工作模式如何探索突破我国孤独症支持服务体系普遍存在的短板和瓶颈,旨在为其他地方提供有益的借鉴与启示。从发展阶段来看,我国孤独症服务体系正由“粗放模式”向标准化、规范化、科学化的服务模式转型升级,着眼提升福建工作模式的示范性和引领力,本文从政策示范、标准引领、规划牵引三个维度提出了具体建议。

The continued rise in the incidence of autism is a major global challenge.There are more than 10 million people with autism in China,which has brought huge pressure and urgent needs to the related medical rehabilitation system.This article diagnoses and identifies the core shortcomings and bottlenecks of China's autism support service system and policy chain,and conducts an in-depth analysis of the unique Fujian working model,especially focusing on how the Fujian working model breaks through the common shortcomings and bottlenecks of China's autism support service system,thereby providing useful reference and inspiration for other regions.From the perspective of development stages,China's autism service system mode is transforming and upgrading from extensive to a standardized and scientific one.With a focus on enhancing the demonstrative and leading role of the Fujian working model,this article proposes specific suggestions from three dimensions,including policy demonstration,standard guidance,and planning guidance.