难治性癫痫患儿主要照顾者家庭复原力的现状及影响因素

Status and influencing factors of family resilience among primary caregivers of children with refractory epilepsy

目的:探究难治性癫痫患儿主要照顾者家庭复原力的现状及影响因素。方法:选取南京医科大学附属儿童医院2020年1月~2022年12月收治的162例难治性癫痫患儿及家庭主要照顾者作为研究对象,收集患儿及主要照顾者一般资料,采用家庭复原力评定量表、社会支持评定量表和自我效能感量表对主要照顾者进行测评,探究社会支持和自我效能感是否为家庭复原力的影响因素。结果:难治性癫痫患儿主要照顾者家庭复原力总分为(73.28±12.23)分,社会支持量表评分为(33.10±4.19)分,自我效能感量表评分为(22.56±5.23)分。Pearson相关性分析显示,难治性癫痫患儿主要照顾者家庭复原力与社会支持、自我效能感均呈正相关(P<0.05)。多元回归分析显示,患儿治疗时间短、主要照顾者文化程度高、就业状况好、家庭人均月收入高、社会支持和自我效能感高是难治性癫痫患儿主要照顾者家庭复原力高的保护因素。结论:难治性癫痫患儿主要照顾者家庭复原力处于中等偏下水平,其受患儿治疗时间、主要照顾者文化程度、家庭人均月收入、就业状况、社会支持和自我效能感影响。

Objective:To investigate the status and influencing factors of family resilience among primary caregivers of children with refractory epilepsy.Methods:We included 162 children with refractory epilepsy admitted to our hospital and their primary family caregivers between January 2020 and December 2022,and collected their general information.Family Resilience Rating Scale,Social Support Rating Scale and Self Efficacy Scale were used to survey these primary caregivers and investigate whether social support and self-efficacy were the factors affecting family resilience.Results:The scores of family resilience,social support scale and self-efficacy scale for the primary caregivers were(73.28±12.23),(33.10±4.19)and(22.56±5.23)points,respectively.Pearson correlation analysis showed that the family resilience of primary caregivers was positively correlated with social support and self-efficacy(P<0.05).Multivariate regression analysis showed that short treatment course for the children,high education level of primary caregivers,good employment status,high family monthly income,social support availability and self-efficacy were protective factors for the family resilience primary caregivers.Conclusion:The family resilience of primary caregivers is relatively at a low level,and affected by the treatment duration of the children,educational level of the primary caregivers,family monthly income,employment status,social support availability and self-efficacy.