青少年1型糖尿病患者患病体验的Meta整合

Illness experience of type 1 diabetes in adolescents: a Meta-synthesis

目的系统评价青少年1型糖尿病患者患病过程中的真实体验。方法计算机检索PubMed、Web of Science、Embase、EBSCO、Cochrane Library、中国生物医学文献数据库、万方数据库、中国知网、维普网中关于青少年1型糖尿病患者患病体验的质性研究。检索时限为建库至2023年7月。由2名经过循证培训的研究人员独立进行文献筛选与资料提取,采用Meta整合方法对结果进行整合。结果最终纳入13篇文献,提炼出42个结果,归纳组成11个类别,综合为4个整合结果,分别为疾病感知、复杂的心理体验、疾病管理、创伤后成长。结论青少年1型糖尿病患者对疾病的认识程度和心理体验应受到重视。医疗机构、家庭和学校应为青少年1型糖尿病患者提供全方位支持,以帮助其提高疾病自我管理水平,改善健康结局,促进创伤后成长。

Objective To systematically review the real experience of type 1 diabetes in adolescents.Methods The qualitative research on the experience of type 1 diabetes in adolescents was electronically searched in PubMed,Web of Science,Embase,EBSCO,Cochrane Library,China Biology Medicine disc,WanFang Database,China National Knowledge Infrastructure,and VIP.The search period was from database establishment to July 2023.Two evidence-based trained researchers independently conducted literature screening and data extraction,and the results were integrated using the Meta-synthesis.Results A total of 13 articles were included,42 results were extracted and classified into 11 categories,which were integrated into four results,namely disease perception,complex psychological experiences,disease management,and post-traumatic growth.Conclusions The awareness and psychological experience of type 1 diabetes in adolescents should be paid attention to.Medical institutions,families and schools should provide all-round support for adolescents with type 1 diabetes to help them enhance their disease self-management,improve their health outcomes and promote their post-traumatic growth.