脑胶质瘤患者术后住院期间真实体验质性研究

Qualitative Study on the Real Experience of Patients with Glioma During Postoperative Hospitalization

目的:了解脑胶质瘤患者术后住院期间的真实体验,为临床制定针对性的护理策略提供参考。方法:采用现象学的研究方法对15例脑胶质瘤术后患者进行半结构式深入访谈,用Colaizzi方法整理分析相关资料。结果:共提炼出4个主题、10个亚主题,即术后生理困扰(疼痛、睡眠障碍、体重下降、肢体麻木)、术后沉重的压力感受(负性情绪、经济压力大、对家庭成员的愧疚、对恢复正常生活的担忧、社会适应力改变与社交回避现象)、渴望获得关于脑胶质瘤治疗的新进展、对医护人员的感谢及对政策支持的需求。结论:脑胶质瘤患者术后存在多方面的情感变化,医护人员在治疗患者疾病的同时,应关注患者的情感变化与实际需求,并根据患者的具体情况,制定具有针对性的护理策略,助其早日康复,回归正常生活。

OBJECTIVE To understand the real experience of postoperative glioma patients during hospitalization,and provide reference for the development of targeted nursing strategies in clinical practice.METHODS A semi-structured in-depth interview was conducted in 15 patients with brain glioma after operation by phenomenological method,and the data were analyzed by Colaizzi method.RESULTS Four themes,ten sub-themes,post-operative physiological distress(pain,sleep disturbance,weight loss,limb numbness),post-operative heavy stress(negative emotions,high financial pressure,guilt towards family members,worries about returning to normal life,changes in social adaptation and social avoidance),desire for new advances in glioma treatment,gratitude to medical staff and need for policy support.CONCLUSION There are many emotional changes in patients with brain glio⁃ma after surgery.Medical staff should pay attention to the emotional changes and actual needs of patients while treating the disease,and formulate targeted nursing strategies according to the specific conditions of patients to help them recover as soon as possible and return to normal life.