生活的回归:青年慢病病人身份认同的质性研究

The Return of Life:A Qualitative Study of the Identity Formation of Young Patients with Chronic Diseases

通过对8名青年慢病病人疾病经历和主观体验的分析,发现他们的疾痛叙事围绕着两个维度展开,初患病时的疾病感知以及带病生存过程中遭遇的困境。虽然疾病打破了青年慢病病人的日常生活,但他们能够接受自身疾病、重新回归日常生活,这一转变过程中身份认同起到关键性作用。价值认同自洽、家庭支持、网络社群归属以及社会角色调适是青年慢病病人身份认同形成的深层机制,从中可以窥见青年慢病病人接受疾病、回归日常生活过程中宏观结构形塑与微观个体建构的交织逻辑,研究最后提出了相关建议。

By analyzing the illness experiences and subjective experiences of eight young patients with chronic diseases,this study reveals that their illness narratives revolve around two dimensions:the perception of illness at the onset,and the dilemmas encountered in the process of surviving with the illness.Although the disease has disrupted the daily lives of young patients with chronic illness,they are able to accept their illness and return to their daily lives,with identity formation playing a key role in this transition process.Value identity self-consistency,family support,network community belonging,and social role adjustment are the deep-rooted mechanisms of identity formation in young patients with chronic diseases.From these findings,insights into the interwoven logic of macro-structural shaping and micro-individual construction in the process of accepting their illnesses and returning to their daily lives can be gleaned.The study concludes with relevant recommendations.