1例克-雅病并发紫色尿袋综合征患者的护理

Nursing care of a patient with Creutzfeldt-Jakob disease complicated with purple urine bag syndrome

总结1例克-雅病并发紫色尿袋综合征患者的护理经验,护理要点包括肌阵挛发作的早期观察和护理,紫色尿袋综合征的识别和处理,实施个性化营养支持,落实隔离防护措施,患者出院前做好居家防护及用药指导,出院后严格核查患者使用后的所有物品,进行终末消毒。经多学科合作治疗和精心护理,患者住院期间无严重并发症发生,15 d明确诊断后家属要求自动出院。出院1个月电话随访,患者无压疮、肺部感染及紫色尿袋综合征等情况发生。

We summarized the nursing experience of a patient with Creutzfeldt-Jakob disease complicated by purple urine bag syndrome.Key nursing points included early observation and care of muscle spasms,identification and management of purple urine bag syndrome,implementation of personalized nutritional support,enforcement of isolation and protective measures,preparation of home protection and medication guidance before discharge,strict verification of all items used by the patient after discharge,and terminal disinfection.Through multidisciplinary collaborative treatment and meticulous care,no serious complications occurred during the patient′s hospitalization period,and the family requested discharge 15 days after a clear diagnosis.A telephone follow-up was conducted one month after discharge,and no pressure ulcers,lung infections,or reoccurrence of purple urine bag syndrome were reported for the patient.