帕金森病病人接受团体康复运动体验的质性研究

Qualitative study of Parkinson′s disease patients receiving group rehabilitation exercise experience

目的:探讨帕金森病病人接受团体康复运动后的体验,为制定相关护理方案提供参考。方法:采用描述性质性研究方法,通过目的抽样选取12例帕金森病病人进行参与式观察和半结构式访谈,应用Colaizzi现象学分析法和资料合众法对资料进行整理分析。结果:共提炼出3个主题及6个亚主题,包括训练获益感(认可训练效果、缓解负性情绪、增进对疾病的了解)、摔倒恐惧、训练需求(改进训练方案的需求、居家康复的需求、渴望社会支持的需求)。结论:团体康复运动整体呈现较好的康复效果和体验,但仍存在相关问题和诉求,医护人员应根据病人需求,探寻应对策略,完善团体康复运动护理体系。

Objective:To explore the experience of patients with Parkinson′s disease after receiving group rehabilitation exercise,and to provide reference for formulating related nursing programs.Methods:A descriptive research method was used to select 12 patients with Parkinson′s disease for participative observation and semi-structured interview.The data were collated and analyzed by Colaizzi phenomenological analysis and data convergence method.Results:A total of 3 themes and 6 subthemes were extracted,including the sense of benefit of training(recognition of training effects,relief of negative emotions,and enhancement of understanding of disease),fear of falling,and training needs(the need for improved training programs,the need for rehabilitation at home,the need for social support).Conclusions:Group rehabilitation exercise presents a good overall rehabilitation effect and experience,but there are still problems and demands.Medical staff should explore coping strategies according to the needs of patients and improve the nursing system of group rehabilitation exercise.