肠造口患儿家庭复原力的调查研究

Investigation of family resilience in infants with enterostomy

目的探讨肠造口患儿家庭复原力现状,并分析其影响因素。方法采用方便抽样法,选取2021年10月至2023年10月于解放军总医院第七医学中心儿科医学部住院的132例肠造口患儿及其照顾者为研究对象。采用一般资料及疾病资料调查问卷、家庭复原力问卷(Family Resilience Questionnaire,FRQ)、肠造口患儿家庭主要照顾者照护能力测评量表、简易应对方式问卷(Simple Coping Style Questionnaire,SCSQ)对其进行调查。统计学方法采用独立样本t检验、单因素方差分析、Pearson相关性分析和多元线性回归分析。结果132例肠造口患儿FRQ总分为(75.34±15.47)分。单因素分析结果显示,患儿性别、手术次数、病程、营养状态、医疗费用支付方式的FRQ得分比较,差异均有统计学意义(P值均<0.05)。肠造口患儿家庭主要照顾者照护能力测评量表总分为(126.38±29.09)分,应对倾向均分为(16.54±8.68)分。Pearson相关性分析结果显示,肠造口患儿家庭复原力与主要照顾者照护能力测评量表、应对倾向得分均呈正相关(r值分别为0.561、0.438,P值均<0.01)。多元线性回归分析结果显示,手术次数、病程、营养状态、主要照顾者照护能力和应对倾向是肠造口患儿家庭复原力的主要影响因素(P值均<0.05)。结论肠造口患儿家庭复原力处于中等水平,建议医护人员针对家庭复原力影响因素积极引导家长提升家庭复原力水平,促进肠造口患儿疾病康复。

Objective To investigate the status of family resilience in infants with enterostomy,and analyze its influencing factors.Method Using convenient sampling method,132 infants with enterostomy and their caregivers who were hospitalized in the Department of Pediatrics,the Seventh Medical Center of Chinese PLA General Hospital from October 2021 to October 2023 were selected as the study objects.General information and disease information questionnaire,Family Resilience Questionnaire(FRQ),the caring ability assessment scale of primary caregivers of infants with enterostomy and the Simple Coping Style Questionnaire(SCSQ)were used to investigate them.Statistical methods performed by independent sample t-test,One-way analysis of variance,Pearson correlation analysis and multiple linear regression analysis.Result The total FRQ score of 132 infants with enterostomy was(75.34±15.47)points.The results of univariate analysis showed that there were statistically significant differences in FRQ scores of gender,number of operations,course of disease,nutritional status and payment method of medical expenses(all P<0.05).The total score of the caring ability assessment scale of primary caregivers of infants with enterostomy was(126.38±29.09)points,and the coping tendency scores was(16.54±8.68)points.Pearson correlation analysis showed that family resilience of infants with enterostomy was positively correlated with the caring ability assessment scale and coping tendency scores of family primary caregivers(r=0.561,0.438,all P<0.01).The results of multiple linear regression analysis showed that the number of operations,course of disease,nutritional status,caring ability and coping tendency of primary caregivers were the main influencing factors of family resilience of infants with enterostomy(all P<0.05).Conclusion The family resilience of infants with enterostomy is at a medium level.It is suggested that medical staff should actively guide parents to improve the family resilience level according to the influencing factors of family resilience,so as to promote the disease recovery of infants with enterostomy.