成年癌症患者自我倡权需求与行为的范围综述

Scoping review of self-advocacy needs and behaviors of adult cancer patients

目的对成年癌症患者自我倡权相关研究进行范围审查,以识别癌症患者自我倡权需求、行为、优势与弊端,为未来该领域的研究提供指导。方法以澳大利亚乔安娜布里格斯研究所范围综述指南为方法学框架,检索PubMed、Web of Science、Cochrane Library、Embase、Science Direct、CINAHL、Scopus、中国知网、万方、维普及中国生物医学文献数据库中相关文献。检索时限为建库至2023年12月,对结果进行汇总分析。结果共纳入14篇文献,自我倡权需求包括症状管理、沟通、人际支持、疾病信息、决策、情绪管理6种需求。自我倡权行为涵盖寻求信息、自我决策、加强与外界联系、有效沟通4个方面。结论成年癌症患者自我倡权需求类型丰富且存在一定自我倡权行为,未来研究要重视自我倡权需求评估,开发相应工具,关注自我倡权行为,发挥自我倡权优势,探究实现有效自我倡权支持的策略。

Objective To conduct a scoping review of research on the self-advocacy of adult cancer patients to identify their self-advocacy needs,behaviors,strengths and weaknesses,so as to provide guidance for future research in this field.Methods Using the scoping review guidelines of Joanna Briggs Institute in Australia as a methodological framework,relevant literatures were searched in PubMed,Web of Science,Cochrane Library,Embase,Science Direct,CINAHL,Scopus,China National Knowledge Infrastructure,Wanfang,VIP and China Biology Medicine disc.The search period was from establishment of the databases to December 2023,and the results were summarized and analyzed.Results A total of 14 articles were included,and self-advocacy needs included six types of needs,such as symptom management,communication,interpersonal support,disease information,decision-making and emotional management.Self-advocacy included four aspects,including seeking information,self-decision-making,strengthening contact with the outside world and effective communication.Conclusions Adult cancer patients have diverse types of self-advocacy needs and certain self-advocacy behaviors.Future research should pay attention to self-advocacy needs assessment,develop corresponding tools,focus on self-advocacy behaviors,leverage the advantages of self-advocacy and explore strategies to achieve effective self-advocacy support.