年轻型痴呆症患者生活体验质性研究的Meta整合

Meta-synthesis of qualitative research on the life experiences of young-onset dementia patients

目的系统评价年轻型痴呆症(YOD)患者生活体验,为医护人员制定有效的支持服务策略提供依据。方法检索PubMed、Embase、Medline、CINAHL、PsycINFO、Scopus、Web of Science、Cochrane Library、中国知网、维普网、万方数据库和中国生物医学文献数据库中关于YOD患者生活体验的质性研究,检索时限为建库至2023年12月10日。采用汇集性整合法对结果进行整合。结果共纳入17篇文献,提炼出69个研究结果,形成11个类别,综合为4个整合结果,即YOD患者遭受沉重的身心负担、YOD患者多重角色受损与社会隔离、YOD患者独特需求和YOD患者多种调适策略。结论医护人员应聚焦YOD患者个人故事,重视其面临的生理、心理、社会多方面挑战,不断完善其支持性护理服务,以减轻患者心理负担,促进其社会联结,协助其重启生活,提升其生命质量。

Objective To systematically evaluate the life experiences of young-onset dementia(YOD)patients and provide a basis for healthcare professionals to develop effective support service strategies.Methods Qualitative studies on the life experiences of YOD patients were retrieved from PubMed,Embase,Medline,CINAHL,PsycINFO,Scopus,Web of Science,Cochrane Library,China National Knowledge Infrastructure,VIP,WanFang data,and China Biology Medicine disc.The search timeframe was from the establishment of the databases to December 10,2023.A Meta-synthesis approach was used to integrate the results.Results A total of 17 articles were included,from which 69 findings were extracted,forming 11 categories and synthesizing into four integrated results:the heavy physical and psychological burden borne by YOD patients,impairment in multiple roles and social isolation,unique needs of YOD patients,and various coping strategies of YOD patients.Conclusions Healthcare professionals should focus on the personal stories of YOD patients,pay attention to their physiological,psychological,and social challenges,and continuously improve supportive care services to alleviate their psychological burden,promote social connections,assist in resuming life,and enhance their quality of life.