利益相关者视角下放化疗宫颈癌患者病痛体验的质性研究

Illness experiences of cervical cancer patients undergoing radiotherapy and/or che-motherapy from a stakeholder perspective:a qualitative study

目的基于利益相关者理论探讨放化疗宫颈癌患者的病痛体验。方法采用描述性现象学研究方法对15例宫颈癌放化疗患者以及12名妇科肿瘤科医护人员进行叙事访谈以及半结构式访谈,运用Colaizzi七步分析法分析资料。结果提炼出3个主题及10个亚主题:身体完整性遭破坏(消化系统损伤、泌尿生殖系统改变、皮肤改变),身份序列被打乱(社会角色转变、家庭角色调整、自我认同危机),新的康复断裂与冲击(医疗照护服务断裂、饮食习惯改变、社会再融入障碍、癌症复发恐惧)。结论放化疗宫颈癌患者病痛体验复杂多样,医护人员应及时评估患者病情和感受,制定针对性的干预措施,缓解患者身心痛苦。

Objective To explore the illness experiences of cervical cancer patients undergoing radiotherapy and/or chemotherapy based on stakeholder theory.Methods A descriptive phenomenological research method was employed to conduct narrative and semi-structured interviews with 15 cervical cancer patients undergoing radiotherapy and/or chemotherapy,as well as 12 gynecolo-gic oncology healthcare professionals.Data were analyzed using Colaizzi′s seven-step analysis method.Results Three main themes and ten sub-themes were identified:disruption of bodily integrity(digestive system damage,changes in the genitourinary system,and skin alterations),disruption of identity sequence(changes in social roles,adjustments in family roles,and self-identity crisis),and new disruptions and impacts in rehabilitation(disruptions in medical care services,changes in dietary habits,difficulties in social reintegration,and fear of cancer recurrence).Conclusion The illness experiences of cervical cancer patients undergoing radiotherapy and/or chemothe-rapy are complex and diverse.Therefore,healthcare professionals should promptly assess patients′conditions and feelings to develop targeted interventions to alleviate their physical and psychological sufferings.