哥德堡先天性心脏病青少年赋能量表的汉化及信效度检验

Sinicization of the Gothenburg Young Persons Empowerment Scale-Congenital Heart Disease and the test of its reliability and validity

背景先天性心脏病(CHD)青少年在成长过程中面临身心挑战,赋能水平是衡量其自我管理能力和生存质量的重要指标。目前中国缺乏相应的评估工具。目的对哥德堡CHD青少年赋能量表(GYPES-CHD)进行汉化,并检验其信、效度,以便在中国的CHD青少年群体中推广应用。设计信、效度分析。方法运用Brislin翻译模型经直译、回译和对比回译进行量表翻译,邀请7名相关领域专家,抽取15名不同年龄段和学业程度的CHD青少年行认知性访谈。纳入在复旦大学附属儿科医院(我院)确诊为CHD并处于我院长期随访队列,具有一定的读写能力,能够理解问卷的10~18岁青少年。排除合并影响智力发育、需多次手术的其他系统疾病及导致精神异常的疾病的患儿。通过问卷星由患儿或家长填写一般资料调查表、中文版GYPES-CHD和中文版一般自我效能感量表(GSES)。校标关联效度以中文版GSES为校标量表,信度采用内部一致性信度和重测信度评价。主要结局指标中文版GYPES-CHD信度和效度。结果共发放166份问卷,回收153份(92.2%),153例进入本文分析。中文版GYPES-CHD分为5个维度,共15个条目;量表各条目及维度得分与量表总分的Pearson相关系数为0.210~0.538(P<0.001);15个条目的决断值为4.218~12.358(P<0.001)。量表的Cronbach'sα系数为0.905,5个分维度的Cronbach'sα系数为0.740~0.851。重测信度为0.869,5个维度的Cronbach'sα系数0.783~0.837,两次量表总分相关系数0.841。中文版GSES总分与中文版GYPES-CHD总分之间的相关系数为0.52(P<0.01),与5个维度的效标关联效度为0.375~0.495(P均<0.01)。结论中文版GYPES-CHD量表具有较好的信效度,可用于评估中国文化背景下CHD青少年的赋能程度。

Background Adolescents with congenital heart disease(CHD)face physical and psychological challenges during their growth.Self-empowerment is an important indicator of their self-management ability and quality of life.Currently,there is a lack of relevant assessment tools in China.Objective To translate the Gothenburg Young Persons Empowerment Scale-Congenital Heart Disease(GYPES-CHD)into Chinese and test its reliability and validity.Design Reliability and validity analysis.Methods The Brislin translation model was used to translate the scale through forward translation,back translation,and back-translation comparison.Seven experts in the relevant fields were invited for evaluation,and a purposive sampling method was used to select 15 CHD adolescents of different ages and educational levels for cognitive interviews.Adolescents with congenital heart disease(CHD)aged between 10 to 18 years,who were diagnosed at our hospital,had long-term follow-up,possessed certain reading and writing abilities,and were able to understand the questionnaire,were included.Adolescents with comorbidities affecting intellectual development,other systemic diseases requiring multiple surgeries,or conditions leading to mental disorders were excluded.Participants completed a general information survey,the Chinese version of the GYPES-CHD,and the General Self-Efficacy Scale(GSES).Main outcome measures Reliability and validity of the Chinese version of GYPES-CHD.Results A total of 166 questionnaires were distributed,and 153 were returned(response rate of 92.16%)to be included in the analysis.The Chinese version of GYPES-CHD consists of 5 dimensions and 15 items.Item analysis showed that the Pearson correlation coefficients between the scores of each item,dimension and the total score of the Chinese version of GYPES-CHD ranged from 0.210 to 0.538(P<0.001).The critical ratio(CR)for the 15 items was between 4.218 and 12.358(P<0.001).The Cronbach'sαcoefficient of the Chinese version of GYPES-CHD was 0.905,and the Cronbach'sαcoefficients for the five dimensions ranged from 0.740 to 0.851.The test-retest reliability was 0.869,and the Cronbach'sαcoefficients for the five dimensions were between 0.783 and 0.837,with a correlation coefficient of 0.841 between the total scores of the two administrations.The content validity index at the scale level and item level were 0.906 and 0.947,respectively.The correlation coefficient between the total GSES score and the total score of the Chinese version of GYPES-CHD was 0.52(P<0.01),and the criterion-related validity with the five dimensions ranged from 0.375 to 0.495(P<0.01).Conclusion The Chinese version of GYPES-CHD has good reliability and validity and can be used to assess the empowerment level of CHD adolescents in the context of Chinese culture.