系统性红斑狼疮患儿家庭抗逆力现状及其影响因素分析

Status quo and influencing factors of family resilience of children with systemic lupus erythematosus

目的 了解系统性红斑狼疮(SLE)患儿家庭抗逆力状况,并探讨影响家庭抗逆力的因素。方法 采用便利抽样法,选取2021年1月至2023年5月在湖南省儿童医院接受治疗的SLE患儿的照护者为研究对象。使用一般资料调查表、简体中文版创伤后成长量表(C-PTGI)、简版中文版家庭弹性量表(FRAS-C)收集数据。采用Pearson相关分析探讨家庭抗逆力与创伤后成长间的关系,并通过多重线性回归分析家庭抗逆力的主要影响因素。结果 SLE患儿家庭弹性总得分为(88.050±18.675)分,照顾者创伤后成长、孩子病程、照顾者性别、照顾者学历、家庭月收入是影响家庭抗逆力的因素(P <0.05)。结论 SLE患儿家庭抗逆力为中等水平,临床人员需要深入评估患儿家庭适应能力,并结合其影响因素制订干预方案,旨在提高家庭抗压能力,促进家庭积极适应度过家庭危机。

Objective To understand the family resilience of children with systemic lupus erythematosus(SLE),and to explore the factors affecting family resilience.Methods The caregivers of children with SLE who were treated in Hunan Children’s Hospital from January 2021 to May 2023 were selected by conve nient sampling method.Data were collected by general information questionnaire,Chinese-posttraumatic growth inventory(C-PTGI)and shortened Chinese version of the family resilience assessment scale(FRAS-C).Pearson correlation analysis was used to explore the relationship between family resilience and post-traumatic growth,and the main influencing factors of family resilience were analyzed by multiple linear regression.Results The total score of family resilience of children with SLE was(88.050±18.675)points,and factors affecting family resilience included caregiver post-traumatic growth,child disease course,caregiver gender,caregiver education,and monthly family income(P<0.05).Conclusion The family resilience of children with SLE is at a moderate level.Clinical personnel need to conduct in-depth evaluations of the child's family adaptability and develop intervention plans based on its influencing factors,aiming to improve the family resilience and promote active adaptation through family crises.