系统性红斑狼疮患者二元应对的潜在剖面分析及与生活质量的关系研究

Potential profile characteristics analysis of dual coping in patients with systemic lupus erythematosus and its relationship with quality of life

目的探讨系统性红斑狼疮(SLE)患者二元应对的潜在剖面特征及其与生活质量的关系。方法采用便利抽样法,选取2022年7月—2023年4月陕西省西安市4所三级甲等医院的SLE患者作为调查对象。采用一般资料调查表、二元应对量表和36条目简明健康调查量表调查患者的一般资料、二元应对状况和生活质量。结果本研究共调查296例SLE患者,其二元应对可划分为“低积极二元应对型”(20.3%)、“中等二元应对-稳定型”(39.2%)和“高二元应对-高共同应对型”(40.5%)3个潜在剖面类别。多元Logistic回归分析结果显示,受教育程度、疲惫程度、患病年限、有无睡眠障碍是SLE患者二元应对剖面类别的影响因素(P<0.05)。Pearson相关性分析结果显示,SLE患者的生活质量与二元应对及其各维度均呈正相关(P<0.01)。3种二元应对剖面类别患者中,低积极二元应对型患者的生活质量得分最低。结论SLE患者的二元应对状况存在明显的分类特征,临床中可根据不同剖面类别的特征制订个体化干预措施。低二元应对水平与SLE患者生活质量降低显著相关,医护人员应重点关注疲惫程度高、睡眠质量差的患者,积极提高其二元应对水平。

Objective To explore the potential profile characteristics of dual coping in patients with systemic lupus erythematosus(SLE)and its relationship with quality of life.Methods Using convenience sampling,SLE patients from July 2022 to April 2023 in four tertiary hospitals in Xi'an,Shaanxi Province,were recruited as study objects.General information,dual coping status scale,and quality of life were assessed using a general information questionnaire,the Dual Coping Scale,and the 36-Item Short Form Health Survey.Results A total of 296 SLE patients were surveyed,and their dual coping strategies could be categorized into three potential profile groups:"Low Positive Dual Coping"(20.3%),"Moderate Dual Coping-Stable"(39.2%),and"High Dual Coping-High Mutual Coping"(40.5%).Multivariate Logistic regression analysis revealed that education level,fatigue level,disease duration,and presence of sleep disturbance were influencing factors of dual coping profile categories among SLE patients(P<0.05).Pearson correlation analysis showed that quality of life was positively correlated with dual coping and its dimensions in SLE patients(P<0.01).Among the three dual coping profile groups,patients with low positive dual coping had the lowest quality of life scores.Conclusion There are distinct classification characteristics in the dual coping status of SLE patients,and individualized intervention measures can be formulated based on the characteristics of different profile categories in clinical practice.Low levels of dual coping are significantly associated with reduced quality of life in SLE patients,and healthcare professionals should prioritize patients with high fatigue and poor sleep quality,and actively enhance their dual coping abilities.