肝癌免疫治疗患者主要照顾者延续照护需求的质性研究

Qualitative research on the continuous care needs of primary caregivers for patients with liver cancer undergoing immunotherapy

目的:深入了解肝癌行免疫治疗患者主要照顾者的延续照护需求,为今后制定针对该类患者的延续照护方案提供参考。方法:选取江苏省某三级甲等医院12例肝癌行免疫治疗患者的主要照顾者作为访谈对象,采用质性研究中的现象学研究方法进行半结构访谈,并用Colaizzi七步分析法对访谈内容进行资料分析。结果:共提炼出5个主题:治疗信息获取需求、健康照护指导需求、心理支持与疏导需求、躯体健康保健需求和照顾者喘息服务需求。结论:主要照顾者的延续照护需求具有多样化特点,医护人员应根据不同需求,为照顾者提供具有针对性的个体化照护支持,通过满足照顾者照护需求,提高照护质量,从而提高患者生活质量。

Objective:To investigate the continuing care needs of primary caregivers for patients with liver cancer undergoing immunotherapy,and to provide references for crafting programs of continuing care for the patients.Methods:The main caregivers for 12 patients with liver cancer undergoing immunotherapy in a Grade A hospital in Jiangsu Province were selected as interview subjects.The phenomenological research method of qualitative research was used to conduct semi-structured interviews,and the data of the interviews were analyzed by Colaizzi seven-step analysis method.Results:Five themes were extracted,i.e.,access to treatment information needs,health care guidance needs,psychological support and counseling needs,physical health care needs and caregivers breathing service needs.Conclusion:The continuing care needs of the main caregivers are diversified.According to the different needs,the medical staff should provide targeted and individualized care support for the caregivers,improve the quality of care by meeting the care needs of the caregivers,and thus improve the life quality of the patients.