儿童肝移植受者父母家庭复原力现况及其影响因素研究

Status Quo of Family Resilience Among Parents of Pediatric Liver Transplant Recipients and Its Influencing Factors

目的 探讨儿童肝移植受者父母家庭复原力现况及其影响因素,为制订相关家庭干预策略提供参考依据。方法 2023年5-8月,采用便利抽样法选取在上海某院肝脏外科行儿童肝移植术后坚持定期随访的儿童肝移植受者父母216例为调查对象,采用家庭复原力评估量表、Zarit照顾者负担量表和过渡期护理质量测评量表等对其进行线上问卷调查。结果 儿童肝移植受者父母家庭复原力、照顾者负担、过渡期护理质量评分分别为(134.56±24.04)分、(26.90±5.71)分、(56.56±9.14)分。不同移植术后并发症种数、移植术后因并发症住院次数、照护者文化程度、家庭月收入、照护者工作状态、家庭类型以及是否获公益基金资助的儿童肝移植受者父母家庭复原力差异均有统计学意义(均P<0.05)。患儿父母家庭复原力与过渡期护理质量呈正相关(r=0.771,P<0.001);与照护者负担呈负相关(r=-0.231,P<0.001)。家庭月收入、父母工作状态、照顾负担、过渡期护理质量是儿童肝移植受者父母家庭复原力的影响因素(均P<0.05)。结论 儿童肝移植受者父母家庭复原力处于中上水平,需加强关注低家庭月收入、父母无工作、照顾负担重及低过渡期护理质量的患儿家庭,采取针对性措施以提高其家庭复原力水平。

Objective To explore the status quo of family resilience among parents of pediatric liver transplant recipients and its influencing factors,and to provide a reference for developing intervention strategies accordingly.Methods From May to August 2023,216 parents of child liver transplant recipients who were regularly followed up after child liver transplantation in the Department of Liver Surgery of a hospital in Shanghai were selected by convenience sampling method.Family resilience assessment scale(FRAS),Zarit caregiver burden inventory(ZBI)and care transitions measure(CTM)were used for online questionnaire survey.Results The scores of family resilience,caregiver burden and care transitions quality were(134.56±24.04),(26.90±5.71)and(56.56±9.14),respectively.There were statistically significant differences in the number of postoperative complications,the number of postoperative hospitalization due to complications,the caregiver’s education level,family monthly income,the caregiver’s working status,family type,and the family resilience of the parents of child liver transplant recipients with or without public welfare fund(all P<0.05).The family resilience of parents was positively correlated with the quality of nursing during the transition period(r=0.771,P<0.001).There was a negative correlation with caregiver burden(r=-0.231,P<0.001).Family monthly income,parents’working status,caring burden and transitional nursing quality were the influencing factors of family resilience of parents of child liver transplant recipients(all P<0.05).Conclusions The family resilience of parents of pediatric liver transplant recipients is above the medium level.More attention should be paid to families with low monthly family income,unemployed parents,heavy burden of care and low quality of transitional care,and targeted measures should be taken to improve their family resilience.