从个人数据视角构建医疗联合体数据共享服务平台的实践和探索

Practice and exploration of constructing a data sharing service platform within medical alliance from the perspective of personal data

解决医疗联合体(以下简称医联体)患者连续性医疗服务和区域数据安全互通共享的痛点问题,武汉协和医院从个人数据角度,采用工业互联网可信数据共享基础设施和区块链健康数据钱包等技术构建医联体数据共享服务平台,为医联体就诊患者提供跨机构主动式的病历资料、检查检验报告、影像学检查结果等个人健康档案数据的授权调阅服务,探索医联体分布式个人健康医疗数据高效联通共享的新型应用模式。经实践验证,本方案能实现个人健康医疗数据共享的标准化,有效控制大数据平台的建设成本,并实现数据共享过程的隐私保护,为"数据要素×医疗健康"提供跨越式的发展途径。

In order to solve the pain point of continuity of medical services for patients and safe interoperability and sharing of regional data within the medical alliance,a medical alliance data sharing service platform was constructed from the perspective of personal data by adopting technologies such as industrial internet trusted data sharing infrastructure and blockchain health data wallet.It could provide cross-institutional active authorization access services for medical records,inspection and test reports,imaging results and other personal health data for patients in the medical alliance,and explored a new application mode of efficient connection and sharing of distributed personal health and medical data in the medical alliance.Through practical verification,it could achieve standardization of personal health and medical data sharing,effectively control the construction cost of big data platforms,and achieve privacy protection in the data sharing process,so as to provide a leapfrog development path for"data elements×medical health".