癫痫患儿家长社会疏离现状及其影响因素分析

Analysis of the Situation and Influencing Factors of Social Alienation Among Parents of Children with Epilepsy

目的:分析癫痫患儿家长社会疏离现状及其影响因素,为临床干预提供参考依据。方法:采用便利抽样法选取2021年3月—2023年2月联勤保障部队第九〇九医院(厦门大学附属东南医院)收治的162例儿童癫痫患儿的父母,每名癫痫患儿选择父亲或母亲作为研究对象。采用一般疏离量表调查患儿家长社会疏离现状,通过单因素和多重线性回归分析不同变量对社会疏离的影响。结果:162名癫痫患儿家长社会疏离评分为(46.30±7.25)分,条目均分为(3.09±0.49)分;癫痫患儿家长SDS总分为(57.66±9.43)分,条目均分为(2.88±0.34)分;病耻感总分为(68.73±11.47)分,条目均分为(2.86±0.39)分;社会支持总分为(29.71±6.36)分,条目均分为(2.97±0.43)分;SDS、病耻感与社会疏离总分及其4个维度均呈正相关关系(P<0.05),社会支持总分及其3个维度与社会疏离总分及其4个维度均呈负相关关系(P<0.05)。单因素分析结果显示,家长性别、患儿病程以及癫痫发作频次是患儿家长社会社会疏离的潜在影响因素。多重线性回归分析结果显示,家长性别、病程、发作频次、SDS评分、病耻感、社会支持评均为癫痫患儿家长社会疏离的独立影响因素。其中女性、发作频次≥1次/月、SDS评分、病耻感总分均为患儿家长社会疏离的风险因素,而病程≥3年(t=-2.316)、社会支持(t=-2.482)则为患儿家长社会疏离的保护性因素。结论:癫痫患儿家长社会疏离评分较高,针对社会疏离的影响因素,临床、社会、家庭应该积极干预,提高患儿家长融入家庭,回归社会的能力。

Objective:To analyze the situation and influencing factors of social alienation among parents of children with epilepsy,and provide reference basis for clinical intervention.Methods:A convenient sampling method was used to select 162 parents of epilepsy patients diagnosed in the hospital.The general alienation scale was used to investigate the social alienation status among parents of children with epilepsy.The influence of different variables on social alienation was analyzed through univariate factor and multiple linear regression.Results:The social alienation score of 162 parents of children with epilepsy was(46.30±7.25),and the average score of entries was(3.09±0.49).The Self-rating depression scale(SDS)score was(57.66±9.43),and the average score of entries was(2.88±0.34).The disease shame score was(68.73±11.47),and the average score of entries was(2.86±0.39).The social support score was(29.71±6.36),and the average score of entries was(2.97±0.43).SDS and shame scores were positively correlated with all dimensions and total scores of social alienation,while social support scores were negatively correlated with all dimensions and total scores of social alienation(P<0.05).Univariate analysis showed that the gender of parents,the course of illness and the frequency of seizure were the potential influencing factors of social alienation of children’s parents(P<0.05).Multiple linear regression showed that parental gender,course of illness,frequency of seizures,SDS,sense of shame and social support rating were all independent influencing factors for parental social alienation in children with epilepsy.Among them,women,frequency of seizures≥1 time/month,SDS,and disease shame were risk factors for social alienation among parents of children with epilepsy.The course of the disease≥3 years(t=-2.316),and social support(t=-2.482)were protective factors for the social alienation among parents of children with epilepsy.Conclusion:Parents of epilepsy patients have a higher social alienation score.In response to the influencing factors of social alienation,clinical,social,and family interventions should be actively carried out to improve the parents’ability to integrate into the family and return to society.