癌症患者对治疗决定的看法及对治疗信息的需求

The Decision-Making and Treatment Information Requirement for The Patients with Cancer

[目的]研究癌症患者对治疗决定的看法及对治疗信息的需求。[方法]广州市两所肿瘤医院、部分综合医院和广东省生命之光俱乐部的清楚自己为癌症的501例患者自行完成了解治疗决定建议的问卷、IPQCP+2、DQ,其中386位患者加答治疗决定经历的问卷和EPQ。[结果]患者治疗决定的经历与建议有显著性差异。希望参与治疗方案制定的患者占49.90%,认为一切由医生决定者占27.54%,由医生和家属决定者占21.56%,学历高者希望参与的比例较大。患者的观点还影响其对总的信息内容和信息量的需求,以及对诊断和预后信息的需求。癌症患者对治疗信息的需求受其文化程度和职业的影响,学历较高和脑力工作者相对需求更多的治疗信息。[结论]医生应根据患者的需求和特点恰当与其讨论治疗方案和给予其治疗信息。

To investigate the decision-making and treatment information requirement for patients with cancer.Five hundred and one cancer patients from two tumor hospitals and some general hospitals in Guangzhou and the'Light of life'club of Guangdong answered the questionnaires with decision-making and experiences for treatments,in an'In-formation Preference Questionnaire for Cancer Patients'and a demographic questionnaire.Three hundred and eighty six of them answered questionnaires with decision-making and treatment information requirment and EPQ additionally.All data were analyzed in detail.Patients'experiences and preferences for treatment were significantly different.49.90%patients preferred to participate in therapeutic decisions,27.54%patients preferred to leave decisions up to doctors and21.56%pre-ferred their doctors and relatives to make therapeutic decisions.Many patients who were better educated preferred to partici-pate in therapeutic decisions.Patients'views impacted their needs for information contents and amounts,and the needs for di-agnosis and prognosis information.Patients'information needs for treatments were influenced by their education and occupa-tion.Those with higher degree and white collar preferred to get more therapeutic information relatively.[Conclusion]Doctors should provide information to cancer patients regarding their treatment properly according their needs and characters.